HSG Staff

Huntington Study Group Staff

Shari Kinel, JD
HSG Executive Director

Shari has been the Executive Director to the Huntington Study Group since 2009. She is a graduate of Brandeis University and she earned a law degree from SUNY Buffalo. Shari manages the overall operations of HSG and oversees governance, grants, contracts, and key objectives and strategies of HSG. Since joining HSG, Shari has served on HD clinical trial steering committees, HD trial project teams and has dedicated a lot of her time working with HD care and community groups. Shari is an attorney who started her career at the US Department of Labor and the US Department of Justice in Washington, DC. She then joined Chase Manhattan’s Bank’s legal team and also spent time on the legal staff at Celltech Pharmaceuticals. Shari also had her own practice representing organizations in business matters involving regulatory compliance, contracts, and corporate policies and procedures.

   (585) 242-0276


Heather Hare
Director of Communications & Outreach

Heather joined the HSG team in May of 2015 as the Director of Communications & Outreach. She holds a BA in print journalism from GWU and spent seven years as a newspaper reporter before making the switch to communications in 2005. She spent a decade at the helm of public relations for the University of Rochester’s Golisano Children’s Hospital. Heather focuses on communication and relationships with HSG members, friends, partners and trial and study participants and through the HSG website, printed materials and other communication tools.

   (585) 242-0277


Stevan Ramirez
HSG Director, Finance and Operations

Stevan was appointed HSG Director of Finance & Operations on January 1, 2015. Stevan holds a BS in Business Management from the University of Redlands in Redlands, CA, and an MBA from the Simon School of the University of Rochester.  He has held several senior level positions with Xerox, Kodak, Carestream Health and ConServe prior to joining HSG.  Stevan is actively involved in the community, serving on various Rochester community boards and currently serves on the Catholic Charities Community Services Board and is part of the Strategic Planning Committee. Stevan was selected in 2003, 2004 and 2005 as one of the United States’ 50 most powerful Hispanic executives in technology and business by a leading Hispanic technology magazine, Hispanic Engineer and Information Technology.

 (585) 244-8804

Kristin Strazdins
HSG Accounting & Office Manager

Kristin joined HSG in February of 2014 as the Accounting & Office Manager. She handles all accounting functions, including site payments and patient travel arrangements, and manages the HSG office and human resource needs. Prior to working for HSG, Kristin worked as a Staff Accountant in a public accounting firm for seven years.

   (585) 242-0967


Anne Van Dusen, CHC
HSG Director of Education & Special Programs

Anne joined the HSG team in June of 2017 as the Director of Education & Special Programs. Anne is part of the Executive team and will develop and implement both educational and program plans that will sustain and help HSG to maintain its standing as a proven world leader in facilitating high quality clinical research trials and studies in Huntington Disease (HD). Anne holds a BS from the University of Binghamton School of Management and is certified in healthcare compliance by the Compliance Certification Board. Prior to joining HSG, Anne held several leadership roles in compliance, quality and finance, most recently at CCSI of Rochester, ACM Medical Laboratory and Lifetime Care Home Care and Hospice. Anne is passionate about trail running and is very active in the local running community.

   (585) 244-9487