Care Education Videos
HD is a treatable disease, and HSG, its members, partners, sponsors, and families are seeking more treatments that make a difference and improve the quality of life for individuals and families living with HD. Only 15-25 percent of individuals with Huntington disease are cared for in an HD subspecialty care center, such as an HSG credentialed research site. That means that the vast majority of this complex care management is occurring in settings where coordinated care and subspecialty expertise may be difficult to find. To help health care providers better navigate caring for families with HD, HSG has created videos to give providers an introduction. (Please see disclaimer below.)
Learn the basics of Huntington disease from HSG member and neurologist Victor Sung, who explains that HD is a treatable disease.
Learn what makes Juvenile Huntington disease different from adult onset from HSG member and neurologist Martha Nance.
Testing for Huntington disease is not just a simple blood test. HSG Member and neurologist Martha Nance explains the ideal ways to provide genetic testing and support for families at risk for HD.
Get advice from HD experts on how they help families who have a new diagnosis of Huntington disease. The video features tips from HSG member and neurologist Martha Nance, HSG member and psychiatrist Martha Edmondson and HSG member and neurologist Daniel Claassen.
Learn the course, progression and stages of Huntington disease from HSG member and neurologist Martha Nance.
Symptoms of HD are treatable. One of the most challenging symptoms of HD is irritability or rage. Learn some coping strategies and pharmacologic treatments for irritability from HSG member and psychiatrist Mary Edmondson. (Irritability care guide.)
Symptoms of HD are treatable. Unawareness can be a frustrating symptom for family members, but HSG member and neurologist Martha Nance and HSG member and psychiatrist Mary Edmondson provide strategies for coping with it.
Symptoms of HD are treatable. Weight loss can be a challenge to combat. HSG member and neurologist Martha Nance gives tips on how to maintain and gain weight.
Having children when a couple is at risk of HD can be a complicated decision. Learn the options from HSG member and neurologist Martha Nance.
Late stage HD requires round-the-clock nursing care, which can be difficult to find because of the nature of Huntington disease. Get practical tips about how to care for individuals with late stage HD.
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