COMPREHENSIVE CARE ACROSS THE LIFECYCLE
Huntington disease (HD) is a treatable, family disease
Held Nov. 4, 2016, at Gaylord Opryland Resort and Convention Center, Nashville, TN
CME4HD was a day-long, in-person continuing medical education program designed to teach healthcare providers how to care for and manage Huntington disease (HD), hosted by the Huntington Study Group (HSG) and the Vanderbilt University School of Medicine. The course coincided with the organization’s annual event, which included its annual meeting, a family education day, and trial meetings. Attendees learned the latest in HD care. They gained the knowledge, tools, and resources they need to provide excellent care to families impacted by HD, and they learned from world experts in HD care.
The goals of this CME activity were for participants to be able to:
- Define core features of Huntington disease with an up-to-date understanding of the diagnosis, staging, and typical symptoms of HD, as well as approaches to treatment.
- Explore ethical dilemmas in genetic testing and current options in reproductive technologies for HD patients and families.
- Outline strategies for behavioral, psychiatric/cognitive, and neurological management of the disease, as well as symptom identification and care options.
- Model the translation of complex clinical information to patients and family, the development of therapeutic relationships, and possess an understanding of available support resources.
- Emphasize the role of ancillary services, such as rehabilitation therapies, genetics, psychology, and social services, in the management of HD.
Course faculty included:
- Daniel Claassen, MD, associate professor of Neurology, Vanderbilt University
- Mary Edmondson, MD, psychiatrist and medical director, HD Reach
- Karen Anderson, MD, associate professor, neuropsychiatrist, and director of the HD Care, Education, and Research Center, Medstar Georgetown University Hospital
- Bob Beall, PhD, former CEO, Cystic Fibrosis Foundation
- Aaron Bowman, PhD, associate professor of Neurology and Pediatrics, Vanderbilt University
- Jeffrey Conn, PhD, director of the Vanderbilt Center of Neuroscience Drug Discovery
- Rebecca Ferrini, MD, MPH, medical director, Edgemoor Distinct Part Skilled Nursing Facility (DP SNF)
- LaVonne Goodman, MD, founder, Huntington’s Disease Drug Works
- Martha Nance, MD, neurologist, clinical geneticist and medical director, Struthers Parkinsons Center
- Vicki Wheelock, MD, clinical professor and director of the HDSA Center of Excellence, University of California Davis
The course was open to any interested healthcare professionals, including primary care physicians, neurologists, psychiatrists, psychologists, nurses, social workers, genetic counselors, and physical and occupational therapists. CME credit was available.
To see past education programs, click here.
Were you unable to join us in-person? Click here to access our primer videos to provide knowledgeable care to HD patients and families.
Save the Date for HSG 2017
The CME4HD course will be held Nov.3, 2017, at HSG 2017 in Denver. More details to come.
Questions? Click here to contact us.