Columbia University

Columbia University

Columbia

Contact Information

Columbia University
630 West 168th Street PO Box 16
New York, New York 10032

  Ronda Clouse  (212) 305-2387

    www.activehd.co.uk


Trials/Studies

Arc-HDFirst-HDLegatoPride2CareCrestPredictHDReach2HD

Site Coordinators

Ronda Clouse, RN

Ms. Clouse joined the HD team in 2004. She has 25 years of research experience working with cognitively impaired neurological and psychiatric patients. Ms. Clouse coordinates the COHORT research study, a multi-center observational study organized by the HSG. She provides general support for several HD research protocols and the HD Center clinic, and will coordinate the upcoming clinical trial 2Care.

 

 

 

 

Paula Wasserman, MA

Ms. Wasserman has worked for the HD center since 2001. She manages the day-to-day operation of the HD Center, and conducts all new patient intakes. Currently, Ms. Wasserman coordinates two HSG sponsored research studies, PREDICT and RESPOND, and provides organizational and recruitment support for several research protocols at the center. In addition, she co-leads the monthly patient support group with Deborah Thorne, LCSW. She continues to serve as the primary neuropsychological tester for the Center.

 

 

 


Masood Manoochehri, BA

Site Investigators

Lori Quinn, EdD, PT

Dr Quinn’s research has focused on developing evidence and guidelines for targeted physical interventions in neurodegenerative diseases, and in particular Huntington’s disease (HD). The Cardiff HD Physiotherapy Group have adopted the Medical Research Council (MRC) Framework for design and evaluation of complex interventions to provide a structure that should ultimately lead to full scale, robust controlled clinical trials. Over the course of the last 6 years, the Cardiff group have validated outcome measures, consulted service users to develop appropriate interventions, and conducted case studies and several larger feasibility studies (MOVE TO EXERCISE, COMMET-HD and TRAIN-HD). Two larger scale studies are currently underway: ExeRT-HD and Engage-HD.

 

Karen Marder, MD

Dr. Marder has been the director of the Center since its inception in 1991. She heads the Clinical Correlates Working Group at the Huntington Study Group and is past member of the HSG Executive Committee. She lectures regularly on Huntington’s disease, conducts clinical research and mentors academics in all disciplines involved in caring for people with HD.

 

 

 

 

Mark Groves, MD

Dr. Groves has been the psychiatrist in the Center since 2002. He completed a psychiatry residency at the New York State Psychiatric Institute and a fellowship in Consultation-Liaison Psychiatry at New York-Presbyterian Hospital, both at Columbia University Medical Center. He currently is the Attending Psychiatrist in the Movement Disorders Clinic at Beth Israel Medical Center/New York and also has a private practice in NYC. He lectures extensively about HD to psychiatrists in the New York region.

 

 

Un Jung Kang, MD
Dr. Kang is a physician scientist who just returned to the Department of Neurology as H. Houston Merritt Professor of Neurology and chief of the Division of Movement Disorders in 2013. He completed his medical training at Johns Hopkins University and his neurology residency and fellowship in movement disorders at Columbia, under the mentorship of his legendary predecessor, Dr. Stanley Fahn. Following his clinical education, Dr. Kang obtained his basic science training in catecholamine molecular biology and gene therapy for Parkinson’s disease (PD), before joining the faculty of the University of Chicago School of Medicine, where he served as professor of neurology and director of the Parkinson’s Disease and Movement Disorders Center until 2013.

 

Pietro Mazzoni, MD, PhD

Dr. Mazzoni leads a laboratory (the Motor Performance Laboratory) devoted to studying principles of human motor control. This research focuses on normal motor control and motor learning, and on the effects of movement disorders, such as Parkinson’s and Huntington’s disease, on motor control. The main research technique employed in the lab is the quantitative analysis of motor performance in tasks designed to answer questions about mechanisms of motor control and motor dysfunction. These studies are framed in the context of theoretical models of motor control that are developed through inter-departmental collaborations.