Contact Me About Future Research

Contact Me About Future HSG Trials & Studies

If you would like the Huntington Study Group (HSG) to contact you about future research information,
please read and complete the consent form to be contacted for future research.


Consent to be Contacted for Future Research

What is the purpose of this consent?
The Huntington Study Group (HSG) is conducting clinical research which seeks treatments that make a difference for Huntington disease (HD). The HSG wants to help you learn more about their research studies, and to provide you with information on research that you may wish to participate in. By signing this form, you will allow qualified professionals on the HSG staff to contact you with information on future research. You have no obligation to actually participate in any study.

What happens if I sign this form?
If you sign this form, you are providing consent for the HSG to collect your name and contact information and put it in a database to contact you via telephone, regular mail, or email about future clinical research opportunities. This information will be kept indefinitely, unless you withdraw your permission. You do not have to consider participating in a study that you are contacted about. You may withdraw permission at any time by contacting the HSG at 1-800-487-7671 or at info@hsglimited.org.

What happens if I don’t complete this form?
Not signing this form will have no influence on your ability to participate in any clinical research study.

Who will have access to my information?
Access will be limited to the HSG staff and will require a password. Your records will be handled as confidentially as possible. No information will be used for research without additional permission. Your contact information will not be shared with anyone outside the HSG.

What do I do if I have questions, now or later?
You can talk with the HSG staff about any questions or concerns you have about this future contact database. Contact the HSG at 1-800-487-7671 or at info@hsglimited.org

What do I do to consent?
If you agree to be contacted in the future, please click next to complete the contact information section, indicating your preferred contact method, and sign.

Please read and complete the consent form:

Fields marked with an * are required

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