Individuals with Huntington disease (HD) and their family members need the expertise of clinicians specializing in neurology, movement disorders, psychiatry, mental health, genetics, and palliative care, as well as ancillary and primary care providers at some point during the complex and progressive course of the disease. Because the disease is so rare, little dedicated attention is given to HD disease in standard medical education programs, and knowledgeable providers can be difficult for families to access. HSG and its members aim to provide educational opportunities to providers so they can offer higher quality care to their patients and families impacted by HD. Click the links below to learn more about educational opportunities and resources available.
Care Education Videos offering providers a primer on caring for individuals with HD. First and foremost, the message is that HD is a treatable disease.
HD Treatment Resources links to care guides, referral resources and materials that can be helpful for families.
Education at Annual Event is an archive of educational courses and trainings from HSG’s annual event.
Our Annual Event gathers expert HD providers, those new to HD, trainees, sponsors, advocacy organizations, and families in one place every year for unique educational and networking opportunities, as well as an in-person CME training.
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