Education

HD Education

Individuals with Huntington disease (HD) and their family members need the expertise of clinicians specializing in neurology, movement disorders, psychiatry, mental health, genetics, and palliative care, as well as ancillary and primary care providers at some point during the complex and progressive course of the disease. Because the disease is so rare, little dedicated attention is given to HD disease in standard medical education programs, and knowledgeable providers can be difficult for families to access. HSG and its members aim to provide educational opportunities to providers so they can offer higher quality care to their patients and families impacted by HD. Click the links below to learn more about educational opportunities and resources available.

Care Education Videos offering providers a primer on caring for individuals with HD. First and foremost, the message is that HD is a treatable disease.

HD Treatment Resources links to care guides, referral resources and materials that can be helpful for families.

Education at Annual Event is an archive of educational courses and trainings from HSG’s annual event.

Our Annual Event gathers expert HD providers, those new to HD, trainees, sponsors, advocacy organizations, and families in one place every year for unique educational and networking opportunities, as well as an in-person CME training.

Please take care to read our Disclaimer of Medical Advice.

Disclaimer of Medical Advice:

You understand and acknowledge that all users of this website are responsible for their own medical care, treatment, and oversight. All of the content provided on the website, including text, treatments, dosages, outcomes, charts, profiles, graphics, photographs, images, advice, messages, and forum postings, are for informational purposes only and DOES NOT CONSTITUTE THE PROVIDING OF MEDICAL ADVICE and is not intended to be a substitute for independent professional medical judgment, advice, diagnosis, or treatment.

The content is not intended to establish a standard of care to be followed by a user of the website. You understand and acknowledge that you should always seek the advice of your physician or other qualified health provider with any questions or concerns you may have regarding your health. You also understand and acknowledge that you should never disregard or delay seeking medical advice relating to treatment or standard of care because of information contained in or transmitted through the website.

Medical information changes constantly. Therefore the information on this website or on the linked websites should not be considered current, complete or exhaustive, nor should you rely on such information to recommend a course of treatment for you or any other individual. Reliance on any information provided on this website or any linked websites is solely at your own risk.

The HSG does not recommend or endorse any specific tests, products, procedures, opinions or other information that may be provided on the linked websites. The linked websites may contain text, graphics, images or information that you find offensive. HSG, its licensors and its suppliers have no control over and accept no responsibility for such materials.