Katrina Hamel: I am the DIFFERENCE

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I am the DIFFERENCE

No one talked about Huntington disease (HD) in Katrina Hamel’s house when she was growing up. No one told her that her grandmother took her own life because of it or that there was a biological reason for her mother’s anger.

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Katrina didn’t hear about HD until she and her brothers moved out and her mother, Allyson, moved from California to Connecticut with an abusive boyfriend. Katrina’s father told her that Allyson knew she had the genetic disease in her family, and she was sure she had it. Katrina couldn’t ask her about it because once Allyson got to Connecticut, she disappeared.

Years later, in 2003, Katrina heard her mother was back in California, pregnant and homeless. Although she was still angry at her mother, she wanted to help, so Katrina who was also pregnant, took in Allyson. Katrina had done some research on HD, but she didn’t find much. Her mother’s behavior was startling.

“It was a really crazy six months,” Katrina said. Katrina was working, running a household, parenting her daughter, and caring for her pregnant and ill mother. Katrina delivered her son, and two weeks later, her mother gave birth.

Allyson’s boyfriend came back and took her and Katrina’s half-brother back to Connecticut. Allyson was supposed to get in touch once they got back there, but like last time, her mother disappeared. Katrina decided to get tested, and she found she doesn’t carry the gene.

Six years later, Katrina, who had been searching for her mother for three years, found Allyson in a homeless shelter in Connecticut. However, the shelter couldn’t provide the level of care she needed. Allyson couldn’t shower or keep herself clean and the shelter didn’t have a medical bed. Katrina found out that her half-brother had gone into foster care and was eventually adopted. After several days of working with the shelter, Katrina connected with a retired airline worker there who volunteered to fly with Allyson back to California.

When Katrina last saw her mother, Allyson was functional and she didn’t have noticeable chorea. Most of her HD symptoms were behavioral and psychiatric. The formerly athletic woman was in a wheelchair when she came off the plane.

“She looked like a homeless person. Her hair was matted. She was emaciated. She smelled of nothing but urine,” Katrina said. “I couldn’t believe what was in front of me.”

Katrina took Allyson home and set her up in her older daughter’s room. She cut off the helmet of hair matted to her head, and to Katrina, her mother seemed happy to be back with her family. It took a couple weeks for the family to see the toll HD had taken on Allyson’s personality and her ability to withstand visits, noise, and spontaneous outings that come with living with a young family. She would get overstimulated and angry. They learned to keep things quiet and predictable.

Allyson was able to use a walker to get around in the house, and although she could feed herself, there was a lot of spilling. Her smoking habit got dangerous, setting her hair on fire several times. They moved to a larger house and gave Allyson a sunroom, which had a door that allowed her to go outside to smoke. Katrina lined the bottom half of the walls with plastic so they could easily clean up after meals. They covered her mattress to protect it from urine and set her up with a bedside commode.

Although Katrina worked in homecare, many of the safety issues HD presented were new to her. She waded through them, using trial and error to provide what Allyson needed. Even still, it was hard to avoid injuries, and Allyson refused to see a doctor. Katrina recalled that her mother once fell and hit the table, which was well padded, but it still cut her ear lobe badly. She wouldn’t go to a doctor and wouldn’t let Katrina call 911. Even if Katrina did, Allyson could refuse care.

“I was literally left with super gluing her ear back together,” Katrina said.

Katrina tried, several times, to call Adult Protective Services on herself, just to get some support and relief, but it never worked. “It was just me and my husband. I never had resources.”

Allyson got weaker and weaker. The happiest times for her was when her social security check would arrive and Katrina would take her to spend it. Allyson would get snacks and Jack in the Box and eat and eat and eat. But after an altercation while out, the police called in the mental health care team and took her to the hospital. Finally, Katrina had help. It wasn’t ideal, but it was help.

While staying in a nursing home three hours away, peppered with visits from Katrina and her family, Allyson dwindled away to just 80 lbs. Katrina, who was now running a hospice care home, knew her mother needed hospice. The hospice house allowed Katrina to sleep there and care for her mother. Allyson died, just 11 days later, with her daughter, two sons, son-in-law and grandchildren by her side.

“She struggled, the entire disease, she struggled,” Katrina said.

After Allyson died, Katrina’s older brother Kevin decided he needed to get tested. Katrina had been juggling so much with her mother’s care, her young family, and her career, she hadn’t seen her brother was already struggling. He was having a hard time keeping a job, his relationships kept blowing up, and he was easily frustrated over the simplest things.

When her brother’s test came back positive, Katrina bawled, but she was grateful that Kevin hadn’t seen the day-to-day struggle their mother had. And his course will be better. Because of Katrina.

Katrina knows home care, hospice, and through caring for her mother, she knows HD very well.

“I do believe some things happen for a reason. I feel like I was set up to be doing what I’m doing now,” Katrina said. “All of these steps led me to be able to take care of my family.”

And she’s not stopping there. While Allyson was still alive, one of the few places she was able to find support was with Help 4 HD. Since her mother’s death, Katrina has gotten progressively more involved in the organization and is currently the Vice President.

In addition, Katrina and her brother have both participated in research as a way to give back to the HD community.

“It definitely makes us feel like we’re contributing in a way we can at this point,” Katrina said. “We leave feeling like we’ve contributed to helping generations after this.”

[youtube width=”100%” height=”100%” autoplay=”true”]https://www.youtube.com/embed/T8zpzYccj64[/youtube]

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  67. Los Blancos, with captain Sergio Ramos suspended after deliberately collecting a yellow card in the first leg, had been looking to build on a slender 2-1 lead from that game in Amsterdam and stay on course for a potential fourth straight European triumph.

    However, after Raphael Varane’s header rattled the crossbar, Ajax raced into an early lead through Hakim Ziyech before Dusan Tadic set up David Neres for a second in the 18th minute.
    tinyurl
    Real Madrid were forced into two changes when Lucas Vazquez and Vinicius Junior went off injured, with substitute Gareth Bale hitting the post just before half-time.

    Ajax looked to have put the tie to bed when Tadic swept in a brilliant third goal just after the hour – which was eventually given following an extensive Video Assistant Referee review to check if the ball had gone out of play in the build-up.

  68. Inter Rapid Wien live score (and video online live stream*) starts on 21.2.2019. at 20:00 UTC time at San Siro/Giuseppe Meazza stadium, Milan, Italy in UEFA Europa League, Knockout stage – Europe. Here on SofaScore livescore you can find all Inter vs Rapid Wien previous results sorted by their H2H matches. Links to Inter vs. Rapid Wien video highlights are collected in the Media tab for the most popular matches as soon as video appear on video hosting sites like Youtube or Dailymotion. We’re not responsible for any video content, please contact video file owners or hosters for any legal complaints tinyurl.

  69. Ernest Quintana, 78, was at Kaiser Permanente Medical Center in Fremont when a doctor – appearing on the robot’s screen – informed him that he would die within a few days.

    A family friend wrote on social media that it was “not the way to show value and compassion to a patient“.

    The hospital says it “regrets falling short” of the family’s expectations.

    Mr Quintana died the next day.

  70. Theresa May says she has secured “legally binding” changes to her Brexit deal, a day ahead of MPs voting on it.

    But European Commission President Jean-Claude Juncker” warned if the deal was voted down there was “no third chance”.

    They spoke at a joint press conference in Strasbourg after a late meeting.

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  72. Despite residing in Germany for nearly 30 years, there are still some things I cannot wrap my mind around. I may have married a German, pay German taxes, and have German(-American) children, but I guess my US mentality still shines through.

    Like when it comes to personal space. I’ll be standing in the supermarket, in front of a shelf full of products, deliberating over the selection, and inevitably a hand will slip itself in front of my face and grab an item from the row. Many Germans seem to not have any qualms about this at all, but it still takes me aback sometimes.

  73. yuuontgk Yeezy Boost 350,If you want a hassle free movies downloading then you must need an app like showbox which may provide best ever user friendly interface.

  74. French President Emmanuel Macron has appointed a panel of experts to investigate France’s actions during the Rwandan genocide 25 years ago on April 7.

    Macron has also met representatives of a group of survivors in. Paris

  75. French President Emmanuel Macron has appointed a panel of experts to investigate France’s actions during the Rwandan genocide 25 years ago on April 7.

    Macron has also met representatives of a group of survivors in. Paris

  76. ¿Tiene en mal estado sus electrodomésticos SAMSUNG? En este enlace te dejamos los de la provincia de Barcelona, para que selecciones el que más te convenga. Hola, puedes conseguir los recambios en cualquiera de nuestros Servicios Técnicos Oficiales de Cádiz. Hola, Susy, los recambios para esta cafetera están disponibles pueden solicitarse en cualquiera de nuestros Servicios Técnicos Oficiales de Palma. Hola, Carmen, puedes encontrarla en cualquiera de los Servicios Técnicos Oficiales de Taurus.

  77. Como esta heladeras soplan el aire frio hacia la parte de abajo, donde la temperatura es mayor y mas humedo, se habia formado mucho hielo en la base del freezr y se habia tadado ese conducto de aire. El el real problema de estos artefactos es la humedad del aire que entra en cada apertura de puertas y el exeso de hielo en los sensores y resistencias encargadas de descongelar los sectores de circulacion de aire. Hola, tengo un conbi liebherr premium no frost y el congelador en la mitad de la parte trasera del congelador tiene hielo, la temperatura q asume es -8 i esta va parpedeando sin llegar a la temp normal entre -1 -18.

  78. Ryska militarfartyg kommer till Filippinerna samtidigt som spanningen okar kring Sydkinesiska sjon. Men framfor allt expanderar nu Kina langt us i Stilla havet. Det vacker oro i USA eftersom Kina anses hota de amerikanska ubatar som ar helt avgorande vid en konflikt.

  79. Apparel Argentina es un lavadero industrial con barrera sanitaria, dedicada al lavado y alquiler de ropa blanca, uniformes de trabajo para ámbito hospitalario y de sanidad, hotelero y gastronómico, gimnasios y spas e industrial en general. Excelentes precios, estupenda calidad de servicio y profesionales en el mercado. Expertos en control de produccion del gremio textil en base a 25 años de ardua labor en el sector. VENTA Y SERVICIO TECNICO DE MAQUINARIA SEMI-INDUSTRIAL PARA LAVANDERIA MARCA MAYTAG, Y TODO TIPO DE MAQUINARIA INDUSTRIAL.

  80. The Portuguese road Prevention agency (PRP) has this week called for more and improved traffic stops in Portugal. The agency has also deemed current actions by law enforcement officials as ineffective in dealing with the majority of serious traffic offences.

  81. The series of conversations with the Warsaw Ghetto survivors was conducted to commemorate the 76 th anniversary of the outbreak of the Warsaw Ghetto Uprising that falls on the 19th of April.

  82. text messaging, or texting, is the act of composing and sending electronic messages, typically consisting of alphabetic and numeric characters, between two or more users of mobile devices, desktops/laptops, or other type of compatible computer.

  83. Except everybody didn’t agree with him. South Bend, Ind., Mayor Pete Buttigieg and Sen. Kamala Harris, D-Calif., each said they opposed giving violent criminals the right to vote from prison.

  84. Raja’s elder brother, who continues to work as a police officer, apologized to the Jones family and complained that Raja had been unfairly treated for what he called “a bad decision.”

  85. The 7th-grade student was repeatedly punched and kicked in her head in a fight that was captured on cell phone footage on April 18. On Sunday, she complained of headaches and fell unconscious.

  86. Google News is a news aggregator and app developed by text. It presents a continuous, customizable flow of articles organized from thousands of publishers and magazines. Google News is available on Android, iOS, and the web. A beta version was launched in September 2002, and released officially in January 2006.

  87. Google News is a news aggregator and app developed by text. It presents a continuous, customizable flow of articles organized from thousands of publishers and magazines. Google News is available on Android, iOS, and the web. A beta version was launched in September 2002, and released officially in January 2006.

  88. Fertility was far from my mind. I was 27, busy pursuing my master’s in social work, hanging out with my friends and my girlfriend, and dreaming about being financially stable enough to get my first dog. The doctor suggested I look into fertility preservation as soon as possible. You want to give yourself the chance, he said, just in case. Suddenly I was on what my doctors called the fertility fast track—my appointments, medications, even my enrollment in the IVF info sessions expedited to get ahead of the vigorous regimen of radiation and chemotherapy I was about to endure.

  89. Google News is a news aggregator and app developed by text. It presents a continuous, customizable flow of articles organized from thousands of publishers and magazines. Google News is available on Android, iOS, and the web. A beta version was launched in September 2002, and released officially in January 2006.

  90. El hooligan del Liverpool que avergonzo Barcelona la vuelve a liar con un ‘Steward
    El mismo personaje que se dedico a empujar gente a la fuente de Barcelona la ha vuelto a liar esta vez bajandole los pantalones a un steward.

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