Welcome new staff member, members of leadership team

754 76

The Huntington Study Group is pleased to announce a new staff member and new members of the leadership team. Anne Van Dusen, CHC, is HSG’s new Director of Education & Special Programs, Sarah Noonberg, MD, PhD, replaces Mike Poole, MD, on the executive committee, and Christopher Beck, PhD, replaces David Oakes, PhD, as HSG’s Director of Biostatistics/executive committee member.

“We are extremely fortunate to have Sarah, Chris, and Anne join our team,” said Ray Dorsey, MD, chair of HSG. “Sarah and Chris have a long-standing interest and record of service in HD. Anne brings much-needed expertise in training to help drive our educational efforts.”

Anne Van Dusen, CHC, Director of Education & Special Programs

Anne joined the HSG team in June of 2017 as the Director of Education & Special Programs. Anne is part of the Executive team and will develop and implement both educational and program plans that will sustain and help HSG to maintain its standing as a proven world leader in facilitating high quality clinical research trials and studies in Huntington Disease (HD). Anne holds a BS from the University of Binghamton School of Management and is certified in healthcare compliance by the Compliance Certification Board. Prior to joining HSG, Anne held several leadership roles in compliance, quality and finance, most recently at CCSI of Rochester, ACM Medical Laboratory and Lifetime Care Home Care and Hospice. Anne is passionate about trail running and is very active in the local running community. 

 

 

Christopher Beck, PhD, HSG Director of Biostatistics

Chris is an Associate Professor of Biostatistics and Orthopaedics at the University of Rochester Medical Center. As a member of several national and international collaborative groups conducting research in areas including Huntington disease, Parkinson disease, Batten disease, bone repair, rheumatoid arthritis, and cardiomyopathy, Chris has extensive experience and a great deal of expertise in the biostatistical aspects of basic and clinical research. He joined HSG in 2005 while serving as a biostatistican for the TREND-HD study, and he has continued in that role for a total of eight HSG studies. Chris is honored to become only the second Director of Biostatistics in the history of HSG.

 

 

Sarah Noonberg, MD, PhD, Executive Committee Member

Sarah is currently the Chief Medical Officer at Prothena, a biotechnology company focused on the discovery, development, and commercialization of novel immunotherapies for diseases involving protein misfolding. Prior to joining Prothena, she served as Group Vice President and Head of Global Clinical Development at BioMarin Pharmaceuticals Inc., where she was responsible for clinical development programs using gene therapies, oligonucleotides, and recombinant proteins to address a diverse range of neurodegenerative, neuromuscular, metabolic, and hematologic diseases. Earlier in her career she led clinical studies in Huntington disease in partnership with the Huntington Study Group, as well as clinical studies in Parkinson’s disease, Alzheimer’s disease, prostate cancer, and cystic fibrosis. Sarah earned her MD at the University of California, San Francisco, her PhD in Bioengineering at the University of California, Berkeley, and her BS at Dartmouth College. She is a board-certified internist and works part-time as a hospitalist physician treating a broad range of inpatient and critical care patients.

There are 76 comments

  1. I simply wanted to thank you so much yet again. I do not know what I would’ve accomplished in the absence of the actual tips discussed by you on my concern. Certainly was the hard situation for me personally, however , taking note of this specialised avenue you treated it forced me to jump with gladness. I’m thankful for your guidance and thus have high hopes you comprehend what a powerful job your are undertaking instructing the rest thru your web site. Most likely you haven’t come across any of us.

  2. I have to express some appreciation to you just for rescuing me from this scenario. Right after looking out through the online world and meeting suggestions that were not pleasant, I was thinking my life was done. Existing without the presence of approaches to the problems you’ve fixed by means of your good article is a critical case, as well as the kind that might have adversely affected my career if I hadn’t noticed your blog. The knowledge and kindness in controlling almost everything was tremendous. I am not sure what I would’ve done if I had not discovered such a solution like this. I’m able to now look ahead to my future. Thank you very much for the impressive and effective guide. I will not think twice to endorse your web page to any person who ought to have assistance on this issue.

  3. I needed to create you a little bit of note so as to thank you so much the moment again over the superb basics you have featured on this page. It was quite unbelievably generous with people like you to convey easily precisely what numerous people would’ve marketed as an electronic book to help with making some bucks for their own end, chiefly given that you might have done it if you considered necessary. The solutions as well served to be the fantastic way to comprehend many people have a similar desire much like mine to know the truth a little more in terms of this condition. I’m certain there are many more pleasant opportunities up front for individuals who scan through your blog.

  4. I have to express my admiration for your kind-heartedness supporting those individuals that need help with in this subject matter. Your personal commitment to passing the message up and down had become exceptionally functional and has really helped folks like me to attain their aims. Your personal insightful useful information means a great deal a person like me and further more to my colleagues. Many thanks; from each one of us.

  5. I really wanted to write down a small remark in order to express gratitude to you for all of the precious tactics you are giving out on this site. My time-consuming internet search has finally been recognized with incredibly good tips to talk about with my visitors. I would claim that we website visitors are really endowed to dwell in a good website with so many brilliant professionals with insightful ideas. I feel pretty happy to have seen your website page and look forward to some more exciting moments reading here. Thanks a lot again for a lot of things.

  6. A lot of thanks for each of your work on this site. Kate really likes making time for research and it’s simple to grasp why. We hear all regarding the compelling mode you give useful secrets through your website and improve participation from other people about this area and my daughter is without a doubt becoming educated a great deal. Take advantage of the remaining portion of the new year. Your conducting a great job.

  7. I and also my pals came examining the great solutions on the blog and unexpectedly I got a horrible feeling I never expressed respect to you for those secrets. The boys are actually for that reason passionate to study all of them and have now in fact been tapping into those things. Appreciation for simply being very considerate as well as for having some marvelous useful guides most people are really desirous to know about. Our honest apologies for not saying thanks to earlier.

  8. My wife and i were really cheerful Chris could conclude his inquiry while using the ideas he was given out of the blog. It is now and again perplexing to just possibly be giving for free facts that some people have been selling. Therefore we realize we now have the writer to give thanks to for this. Those explanations you have made, the simple web site menu, the friendships you will give support to engender – it is many awesome, and it’s letting our son and the family know that the theme is exciting, which is certainly extraordinarily fundamental. Thanks for all!

  9. I simply wanted to thank you so much once more. I am not sure the things that I would have gone through without the type of methods revealed by you about such problem. It had been a real frustrating situation for me, nevertheless discovering your professional mode you processed that took me to jump for delight. I’m grateful for this information and then pray you know what a powerful job that you’re providing teaching some other people through a blog. More than likely you’ve never come across all of us.

  10. I together with my guys came looking at the best procedures located on the website then the sudden came up with a horrible suspicion I had not expressed respect to the web site owner for those tips. Most of the guys appeared to be certainly very interested to see them and have certainly been taking advantage of them. Appreciate your genuinely indeed helpful and then for deciding upon this kind of important subject matter millions of individuals are really needing to be informed on. Our own honest apologies for not expressing gratitude to you earlier.

  11. I simply wanted to write a simple message so as to thank you for all the splendid points you are showing on this site. My incredibly long internet research has at the end been rewarded with good quality know-how to write about with my family and friends. I ‘d admit that we readers are undeniably lucky to exist in a notable network with many brilliant professionals with interesting secrets. I feel somewhat lucky to have come across your website page and look forward to plenty of more fabulous minutes reading here. Thanks a lot once more for everything.

  12. Thank you a lot for providing individuals with remarkably terrific opportunity to read from this web site. It is always very superb plus packed with a lot of fun for me and my office acquaintances to visit the blog at a minimum 3 times in 7 days to find out the fresh tips you will have. And indeed, I am usually satisfied with your effective principles you serve. Selected 3 tips on this page are definitely the simplest we have all ever had.

  13. I have to show my affection for your kind-heartedness giving support to individuals that need assistance with this area of interest. Your very own commitment to getting the message along ended up being unbelievably productive and has constantly allowed men and women much like me to attain their aims. The useful report implies a great deal to me and far more to my mates. Regards; from each one of us.

  14. A lot of thanks for all your labor on this site. Ellie loves participating in investigations and it is simple to grasp why. Most of us hear all concerning the dynamic manner you deliver great tips and tricks via the blog and therefore boost participation from some others about this content plus my daughter is certainly understanding a great deal. Take pleasure in the rest of the year. Your performing a fantastic job.

  15. My husband and i got absolutely joyful Ervin could complete his investigation through the precious recommendations he was given from your very own web site. It is now and again perplexing just to possibly be making a gift of strategies some other people may have been selling. We really figure out we have the writer to be grateful to for that. The main explanations you made, the simple website menu, the friendships your site aid to promote – it is mostly sensational, and it is letting our son in addition to us know that that idea is exciting, and that’s exceptionally fundamental. Thanks for the whole thing!

  16. I must convey my love for your generosity for folks that actually need help with this important subject. Your real dedication to getting the message throughout came to be pretty functional and has continuously made regular people just like me to get to their dreams. Your amazing invaluable tutorial denotes much a person like me and substantially more to my peers. Thank you; from everyone of us.

  17. I wanted to put you one tiny word to help say thank you as before over the remarkable techniques you have discussed here. This is quite particularly generous with you to supply unhampered precisely what a lot of people might have marketed as an e book to make some bucks on their own, notably now that you could possibly have tried it if you ever desired. The basics additionally worked to become fantastic way to fully grasp someone else have the identical keenness like mine to see a whole lot more on the subject of this matter. I think there are many more enjoyable sessions up front for folks who look into your blog.

  18. I am glad for commenting to make you know what a terrific encounter my girl had using your web site. She picked up a wide variety of details, which included what it’s like to have a very effective teaching spirit to get other individuals quite simply comprehend chosen extremely tough issues. You undoubtedly surpassed people’s expected results. Many thanks for presenting the interesting, dependable, edifying as well as fun tips on your topic to Evelyn.

  19. Thank you so much for providing individuals with an extremely memorable opportunity to read from this site. It is often very amazing plus packed with a good time for me personally and my office co-workers to visit your website at the least thrice in a week to learn the new secrets you have got. And indeed, I’m also at all times impressed concerning the remarkable information you serve. Certain 4 areas in this post are rather the most efficient we have all had.

  20. I precisely wanted to thank you very much again. I am not sure what I would have undertaken without the secrets contributed by you over my situation. It truly was the horrifying setting for me, nevertheless finding out this professional strategy you resolved the issue forced me to cry for gladness. I’m thankful for the service and thus expect you really know what a great job that you are undertaking training people today through the use of your website. I know that you’ve never come across all of us.

  21. I as well as my buddies were actually looking at the excellent pointers on your web page and so instantly developed a horrible suspicion I had not expressed respect to the site owner for them. My women were as a result warmed to read through them and have in effect in reality been having fun with those things. I appreciate you for really being indeed accommodating as well as for considering this kind of wonderful subjects most people are really eager to discover. Our sincere apologies for not expressing gratitude to sooner.

  22. I wish to show some appreciation to the writer just for rescuing me from this condition. Because of surfing around through the world wide web and meeting methods that were not powerful, I thought my entire life was gone. Living without the solutions to the problems you have fixed all through the guideline is a serious case, and ones that could have in a wrong way damaged my entire career if I had not encountered your blog post. Your own competence and kindness in playing with every item was helpful. I am not sure what I would’ve done if I hadn’t come upon such a thing like this. I can at this time look ahead to my future. Thanks a lot so much for the impressive and effective help. I won’t be reluctant to refer your site to any individual who needs to have recommendations on this problem.

  23. I simply wanted to make a word to be able to say thanks to you for some of the lovely tips you are sharing at this site. My particularly long internet lookup has now been honored with really good tips to talk about with my friends and classmates. I would claim that we site visitors are undeniably fortunate to live in a perfect site with many special professionals with very beneficial pointers. I feel rather happy to have come across your entire website page and look forward to tons of more brilliant moments reading here. Thanks a lot once more for everything.

  24. I together with my friends were found to be digesting the good suggestions located on your site and so then I got a terrible suspicion I never expressed respect to the web site owner for those secrets. Those women happened to be for this reason stimulated to read them and now have pretty much been tapping into those things. Appreciation for indeed being indeed thoughtful as well as for picking this sort of high-quality ideas most people are really needing to be informed on. Our sincere apologies for not expressing appreciation to you earlier.

  25. I actually wanted to develop a small remark in order to thank you for all the fantastic tips and hints you are writing here. My particularly long internet research has at the end of the day been recognized with awesome insight to share with my family. I ‘d declare that we readers actually are rather endowed to be in a wonderful network with so many brilliant people with helpful things. I feel very much fortunate to have used your entire web pages and look forward to really more pleasurable minutes reading here. Thanks once again for everything.

  26. My husband and i were satisfied when Peter could finish up his researching through your precious recommendations he gained from your very own weblog. It is now and again perplexing to simply continually be offering guidance some other people have been making money from. And we grasp we’ve got you to appreciate because of that. Those illustrations you’ve made, the straightforward web site navigation, the relationships you will aid to instill – it’s got mostly astonishing, and it’s really facilitating our son in addition to the family reason why the subject is satisfying, which is seriously serious. Thank you for the whole lot!

  27. I and also my friends came viewing the good information from your website and so instantly got a horrible feeling I never thanked the web blog owner for them. The men ended up as a consequence thrilled to read through them and already have absolutely been having fun with them. Thanks for simply being really accommodating and also for going for some magnificent areas most people are really desirous to be aware of. My personal honest regret for not expressing appreciation to you sooner.

  28. I happen to be commenting to make you be aware of of the remarkable encounter my girl found browsing your webblog. She came to find lots of issues, not to mention what it’s like to possess an excellent helping mindset to have the mediocre ones very easily fully understand selected very confusing issues. You really surpassed visitors’ desires. I appreciate you for churning out the beneficial, trustworthy, educational and also unique guidance on this topic to Emily.

  29. I precisely desired to thank you so much again. I’m not certain the things I might have carried out in the absence of the actual tricks shown by you concerning such a situation. It became an absolute distressing circumstance in my position, nevertheless coming across a new professional style you handled that forced me to cry with fulfillment. Extremely thankful for your assistance and then pray you know what a great job that you are carrying out educating the mediocre ones thru your web site. I am certain you’ve never come across all of us.

  30. My spouse and i were very thankful that Peter managed to finish off his research out of the precious recommendations he came across when using the web pages. It’s not at all simplistic to just happen to be releasing tips and tricks people could have been selling. Therefore we do know we’ve got the website owner to be grateful to for that. All the explanations you have made, the easy blog navigation, the relationships you can help to engender – it is all awesome, and it’s really leading our son in addition to the family do think this concept is satisfying, which is certainly particularly pressing. Thank you for the whole thing!

  31. Thanks a lot for giving everyone an extremely spectacular opportunity to read from here. It is always so superb and as well , stuffed with a lot of fun for me and my office acquaintances to search the blog minimum thrice in 7 days to read through the latest guides you will have. Of course, I am just actually fulfilled considering the great opinions served by you. Certain 2 points in this post are undeniably the most beneficial we have ever had.

  32. My wife and i ended up being so comfortable when Louis could conclude his reports from your precious recommendations he made from your own web pages. It’s not at all simplistic to simply possibly be freely giving solutions that many many others could have been selling. And we also already know we have the blog owner to thank for this. The type of explanations you have made, the simple website navigation, the friendships your site help to instill – it’s got everything spectacular, and it is assisting our son in addition to us reckon that the theme is entertaining, which is certainly very serious. Many thanks for all!

  33. Needed to draft you that tiny word so as to give thanks over again on the exceptional secrets you’ve shared on this site. This is incredibly generous with people like you to provide freely all that a number of people could possibly have supplied as an electronic book to help with making some profit for themselves, certainly seeing that you might have tried it if you decided. Those smart ideas also acted to become a easy way to comprehend other people online have the identical fervor the same as my very own to learn a whole lot more with regards to this problem. I think there are millions of more pleasant occasions in the future for those who scan your blog.

  34. A lot of thanks for your own labor on this site. My daughter delights in getting into investigation and it is easy to understand why. Most people learn all regarding the powerful means you render functional techniques via your web blog and as well encourage participation from other ones on that subject while my princess is discovering a great deal. Take advantage of the rest of the year. You’re performing a tremendous job.

  35. I needed to send you the very little word to finally say thanks the moment again for the splendid guidelines you’ve featured on this page. It was simply shockingly generous with people like you giving unhampered what a number of people could possibly have advertised for an e-book to earn some profit on their own, most notably seeing that you might well have tried it if you ever decided. These concepts likewise acted to become good way to be aware that some people have a similar desire really like my personal own to know lots more when it comes to this issue. Certainly there are many more pleasurable periods in the future for those who scan through your blog.

  36. I wanted to create you the little bit of observation so as to say thanks a lot as before relating to the pleasant principles you’ve discussed in this case. It was certainly pretty generous with people like you to deliver freely what exactly most of us would have made available for an e-book to help make some money for themselves, notably considering that you could have done it if you ever wanted. These good ideas additionally acted to provide a great way to fully grasp that other individuals have a similar fervor much like my personal own to know the truth a great deal more with respect to this issue. I know there are lots of more pleasant periods ahead for individuals who go through your site.

  37. I enjoy you because of each of your labor on this web site. Betty takes pleasure in doing investigations and it is easy to understand why. My spouse and i learn all about the dynamic medium you offer informative tricks on this website and in addition attract response from people on that content while our favorite child is without a doubt understanding so much. Take advantage of the rest of the year. You are performing a dazzling job.

  38. I’m writing to make you know of the helpful discovery my friend’s princess gained browsing your blog. She picked up a wide variety of issues, not to mention what it’s like to have an awesome helping nature to have other people completely know a number of grueling subject matter. You really did more than my expected results. Thank you for supplying the priceless, trusted, revealing and as well as fun tips about your topic to Lizeth.

  39. I wish to show my passion for your kind-heartedness for folks that actually need help on this content. Your special commitment to passing the solution throughout came to be exceptionally informative and have continuously enabled those much like me to achieve their targets. Your own interesting instruction entails this much to me and additionally to my colleagues. Best wishes; from each one of us.

  40. Needed to put you the very little observation to say thank you over again for those splendid principles you have discussed at this time. This is so surprisingly open-handed of people like you to allow easily precisely what a few individuals could have distributed for an electronic book in order to make some bucks for their own end, specifically considering the fact that you might have tried it in the event you considered necessary. Those ideas in addition served like the great way to understand that some people have similar zeal really like my own to find out somewhat more concerning this matter. I am sure there are millions of more pleasant moments ahead for individuals that looked at your blog.

  41. My wife and i were now joyful John managed to carry out his survey from the ideas he grabbed when using the weblog. It’s not at all simplistic to simply find yourself freely giving secrets which often people might have been making money from. And we recognize we now have the blog owner to thank for this. Most of the explanations you’ve made, the simple blog menu, the friendships you help to foster – it’s many exceptional, and it’s really letting our son in addition to us understand the matter is excellent, and that’s very fundamental. Many thanks for all!

  42. I must get across my affection for your generosity in support of women who absolutely need help on this important idea. Your real commitment to passing the solution all through was particularly informative and have surely enabled others just like me to realize their aims. Your entire helpful help and advice can mean so much a person like me and especially to my colleagues. Thanks a ton; from each one of us.

  43. I’m commenting to let you know of the brilliant encounter our child had visiting your webblog. She came to find a wide variety of pieces, most notably what it is like to have an amazing giving nature to have a number of people with no trouble have an understanding of a variety of grueling things. You undoubtedly exceeded her desires. Thank you for displaying such invaluable, trusted, educational and easy guidance on the topic to Mary.

  44. I wanted to send you that bit of word to help thank you so much over again about the awesome solutions you’ve shown on this site. It is certainly generous with you to supply extensively what some people would have distributed as an e book to get some cash for their own end, chiefly now that you might well have tried it in the event you decided. These inspiring ideas additionally served to be a good way to comprehend some people have the identical eagerness much like my very own to understand many more in respect of this problem. I believe there are millions of more pleasant moments ahead for people who check out your blog post.

  45. Needed to post you the tiny observation just to say thank you the moment again for your remarkable guidelines you’ve contributed above. It’s certainly extremely generous with people like you to allow openly precisely what many people could possibly have made available for an e book to make some bucks on their own, precisely seeing that you might well have tried it if you wanted. These good tips in addition acted to become great way to know that some people have the same fervor similar to my very own to grasp whole lot more in terms of this matter. Certainly there are millions of more pleasant opportunities ahead for individuals that read your website.

  46. My wife and i got so thankful Emmanuel could finish off his researching through the ideas he was given from your very own site. It’s not at all simplistic just to happen to be freely giving techniques which usually men and women might have been trying to sell. And we also keep in mind we have got the blog owner to be grateful to for this. All of the illustrations you have made, the straightforward blog menu, the friendships you will make it possible to engender – it is all astounding, and it’s really facilitating our son in addition to the family know that the subject matter is pleasurable, and that is rather vital. Many thanks for all!

  47. I precisely wished to say thanks again. I am not sure the things that I would’ve made to happen in the absence of these smart ideas contributed by you directly on such subject. It has been a very intimidating difficulty for me personally, but being able to view the skilled form you dealt with it took me to leap over happiness. Now i’m thankful for the assistance and as well , hope that you know what a great job you are always undertaking educating the others thru your web page. I know that you’ve never got to know any of us.

  48. My spouse and i got very fortunate that John managed to carry out his basic research by way of the precious recommendations he grabbed out of your site. It is now and again perplexing just to choose to be making a gift of information which the rest could have been making money from. And we all do know we need you to give thanks to for this. The most important explanations you made, the straightforward web site menu, the friendships your site aid to foster – it is all remarkable, and it’s leading our son and the family believe that the subject matter is entertaining, which is particularly indispensable. Thanks for all!

  49. My spouse and i felt absolutely peaceful when Jordan managed to deal with his reports from the precious recommendations he made in your web site. It’s not at all simplistic just to happen to be giving away guides which often some people might have been making money from. Therefore we acknowledge we have the writer to be grateful to for this. These explanations you made, the straightforward web site menu, the relationships your site help promote – it’s all amazing, and it’s facilitating our son and us do think the theme is thrilling, and that is truly indispensable. Many thanks for the whole thing!

  50. I wish to point out my admiration for your kind-heartedness supporting those people that absolutely need assistance with in this matter. Your special commitment to getting the solution along became definitely interesting and have all the time made workers like me to realize their aims. Your new interesting facts signifies so much a person like me and a whole lot more to my mates. With thanks; from everyone of us.

  51. I wanted to draft you that little bit of word so as to thank you the moment again regarding the lovely techniques you’ve discussed above. This is extremely generous with you to allow unhampered what most of us could possibly have marketed as an ebook to end up making some cash for their own end, even more so considering the fact that you might have tried it if you decided. Those strategies likewise served like a good way to comprehend many people have the same dream really like my own to grasp very much more with respect to this matter. I believe there are lots of more pleasurable situations in the future for individuals that see your site.

  52. I simply had to say thanks all over again. I’m not certain the things that I might have handled in the absence of these tactics contributed by you on such problem. It was a real depressing dilemma in my position, however , looking at the very professional tactic you processed the issue made me to leap for gladness. I am thankful for the support as well as believe you find out what an amazing job you were carrying out teaching many people via your blog. I know that you haven’t come across all of us.

  53. Thanks for all of your effort on this blog. My mum really likes carrying out internet research and it is easy to see why. Almost all notice all regarding the lively manner you render reliable guidelines by means of your web blog and as well invigorate contribution from other individuals on this content so my child has always been understanding a lot of things. Enjoy the rest of the new year. You are doing a glorious job.

  54. I as well as my buddies were actually analyzing the nice guides from your web blog and then then I had a terrible suspicion I never expressed respect to the site owner for those tips. My boys appeared to be as a result happy to see all of them and have absolutely been having fun with them. I appreciate you for genuinely simply kind as well as for making a decision on these kinds of exceptional subject areas millions of individuals are really desirous to know about. Our honest regret for not expressing appreciation to you earlier.

  55. I not to mention my friends were found to be reading through the good suggestions on your web site then before long developed an awful feeling I had not expressed respect to the web blog owner for those tips. Those guys appeared to be as a consequence passionate to see them and already have in reality been enjoying these things. We appreciate you actually being considerably kind and also for finding such very good tips most people are really needing to be aware of. My sincere regret for not saying thanks to you earlier.

Leave a comment

Your email address will not be published.

Related Post

We need you!

April 12, 2017 68
HSG currently has two surveys in which your input is invaluable. We know there are a lot of surveys going…