Connect to the HD Community

HD Advocacy Organizations

Australian Huntington’s Disease Association

An Australian advocacy organization dedicated to providing the best quality of life for those with HD, their families, and carers through advocacy, support, and education; this branch serves Southern Australia.

Address: AHDA (SA/NT) Inc., PO Box 580, North Adelaide, SA 5006
Phone: (08) 8352 2202
Email: mail@huntingtonssa.org


Australia – Huntington’s NSW

An Australian advocacy organization dedicated to providing the best quality of life for those with HD, their families, and carers through advocacy, support, and education; this branch serves New South Wales and the Australian Capital Territory.

Address: Huntington’s New South Wales, PO Box 178, West Ryde, NSW, 1685, Australia
Phone: (61) 2 9874 9777
Email: info@huntingtonsnsw.org.au


Australia – Huntington’s Queensland

An Australian advocacy organization dedicated to providing the best quality of life for those with HD, their families, and carers through advocacy, support, and education; this branch serves Queensland.

Address:  PO Box 635, 385 Ipswich Road, ANNERLEY, Q. 4103, Australia
Phone: (07)3391 8833
Email: admin@huntingtonsqld.org.au


Australia – Huntington’s Victoria

An Australian advocacy organization dedicated to providing the best quality of life for those with HD, their families, and carers through advocacy, support, and education; this branch serves Victoria.

Address: PO Box 2112, Hawthorn, Victoria 3122
Phone: 03 9818 6333
Email: info@huntingtonsvic.org.au


Australia – Huntington’s Western Australia

An Australian advocacy organization dedicated to providing the best quality of life for those with HD, their families, and carers through advocacy, support, and education; this branch serves Western Australia.

Address:  Western Australia. The Niche 11 Aberdare Road Nedlands WA 6009
Phone: (08)9346 7599
Email: admin@huntingtonswa.org.au


CHDI

A non-profit biomedical research organization whose mission is to develop drugs that will slow the progression of HD and provide clinical benefit to patients.

Address: 350 Seventh Ave, Suite 200, New York, NY 10001
Phone: 212-239-9300
Email: info@chdifoundation.org


EHDN

A network that facilitates HD studies and trials and connects researchers and families impacted by HD throughout Europe.The website provides information on current trials and a list of current study sites.

Address: Oberer Eselsberg 45/1, D-89081 Ulm, Germany

Email: 
info@euro-hd.net


Gene Veritas

A blog written by an individual at risk for Huntington’s Disease that shares news articles and personal experiences.


HD Buzz

An internet portal that provides high-quality HD research news to the global community; written by clinicians and scientists in understandable language.


HD-CARE

A support group that seeks to advance HD research and clinical care at the University of California Irvine. The website provides information about the clinic, clinical trials, and area resources.

Address: P.O. Box 8036 Newport Beach, CA 92658
Phone: 949-824-3061
Email: HDCareorg@gmail.com


HD Drug Works (HDDW)

An organization whose primary focus is to provide information about the present treatment options available for HD.

Address: 17171 Bothell Way, PMB 148, Lake Forest Park, WA 98155
Phone: 1-866-280-3799 or 1-206-362-0142


HD Reach

A non-profit organization that provides access to care, education, and social assistance for those affected by Huntington’s Disease in North Carolina. The HD Reach blog provides recent news and resources.

Address: 1004 Dresser Court, Suit 107 Raleigh, NC 27609-7325
Phone: 919-803-8128
Email: info@hdreach.org


HDYO

An international non-profit organization designed to provided support for young people impacted by HD

Email: info@hdyo.org


Help 4 HD

An organization dedicated to educating the world about HD through a multimedia platform, supporting the HD community, and promoting clinical trials for HD and JHD.

Address: Help 4 HD International, 5050 Laguna Blvd. 112 543, Elk Grove, CA 95758
Phone: 916-698-0462
Email: Katie@Help4HD.org


Hereditary Disease Foundation (HDF)

A fundraising and research institution that aims to cure genetic illness by supporting biomedical research. The website shares recent news and developments regarding HD.

Address: 3960 Broadway, 6th Floor New York, NY 10032
Phone: 212-928-2121
Email: cures@hdfoundation.org


Huntington’s Disease Foundation (HDFI)

Huntington’s Disease Foundation (HDFI) was founded by three individuals who are passionate in finding a cure for HD and to assist those families who are struggling daily with this horrible disease.

Address: P.O. Box 912, Salado, Texas


HD Support & Care Network

A non-profit organization that helps HD families find resources for support and care.

Address: 436 Playa Blanca St, Santa Maria, CA 93455
Phone: 805-354-0708
Fax: 805-934-9614
Email: melissa@hdscn.org


Huntington’s Disease Association, Ireland

An Irish charity organization that supports those affected by HD and provides information and advice to professionals who support HD families.

Address: Carmichael Centre, North Brunswick Street, Dublin 7, IRELAND.
Phone: +353 (0) 1 872 1303
Email: info@huntingtons.ie


Huntington’s Disease Lighthouse Families

An educational website which presents the latest findings in HD research and shares stories of those impacted by HD.

Email: marsha@hdlighthouse.org


Huntington’s Disease Society of America

A non-profit organization that provides help, education, and outreach to HD families and health care professionals across the United States.

Address: 505 Eight Avenue Suite 902 New York, NY 10018
Phone: 212-242-1968 (national office)
Email: hdsainfo@hdsa.org


Huntington Society of Canada

A non-profit organization located in Canada that raises funds to support medical research on HD and to deliver counseling services to those affected by HD.

Address: 151 Frederick Street, Suite 400 Kitchener, Ontario Canada N2H 2M2
Phone: (519) 749-7063 (local) and (800) 998-7398 (toll free)
Email: info@huntingtonsociety.ca


International Huntington Association

A federation of voluntary health agencies that share a common concern for HD individuals and families. IHA provides information and a map of local organizations.

Email: iha@huntington-assoc.com


Movement Disorders Society

A group of medical professionals and researchers that provide information about HD and other neurodegenerative and movement disorders.

Address: 555 East Wells Street, Suite 1100 Milwaukee, WI 53202-3823
Phone: 414-276-2145
Email: info@movementdisorders.org


NINDS

A government-sponsored research institution providing basic information about HD and other neurological disorders.

Address: NIH Neurological Institute P.O. Box 5801 Bethesda, MD 20824
Phone: (800) 352-9424 or (301) 496-5751


NJ CURE HD

A statewide organization, comprised of passionate individuals, united as a community, in the fight against HD.

Address: P.O. Box 45, Metuchen, NJ 08840
Phone: 732-887-3751
Email: njcurehd@gmail.com


Philly Cure HD

Philly Cure HD offers support to the local Huntington’s disease community, educates the greater community about HD and the impact this neurodegenerative genetic disorder has on individuals and families, and supports HD research.

Address: P.O. Box 4045, Philadelphia, PA 19118
Phone: 215-219-3521
Email: info@phillycurehd.org


Stanford HOPES

A student-run project at Stanford University dedicated to making scientific information about HD more accessible to the public.


We have a Face

An advocacy group dedicated to broadening global awareness of HD and JHD.