Accelerating treatments that
make a difference
for Huntington's disease
Founded in 1993, Huntington Study Group (HSG) is an organization of compassionate professionals dedicated to accelerating treatments that make a difference and to improving the quality of life and outcomes for those impacted by Huntington’s disease (HD) through research, education, and collaboration. We build HD-focused teams of clinical researchers, medical professionals, and sponsors, and together partner in the conduct of GCP compliant clinical research, knowledge sharing, and development of innovative treatments for HD.
Advancing HD Clinical Research
Become a Credentialed Site, Investigator, or Coordinator
The HSG Credentials Committee maintains credentialing standards and policies to ensure sites meet standard qualifications, are trial ready, and agree to uphold HSG’s principles.
Join a Study or Trial
When you participate in clinical research, you have the ability to actively contribute to science, share your experiences, improve treatments, and help other people impacted with HD.
Partner Research Organization (PRO) Services and Solutions
HSG is the global leader in Huntington’s disease clinical research, providing scientific, clinical, and operational expertise to design and conduct clinical trials exclusively for Huntington’s disease.
Don't miss HSG 2024!
Since 1993, the Huntington Study Group has hosted its annual, internationally recognized forum for training and education of Huntington’s disease researchers, and to share new research findings and treatments with the worldwide community, plus much more!
HSG Research Services
HSG is the only Partner Research Organization (PRO) fully dedicated to the design and execution of Huntington’s disease trials. In the past 30 years HSG has led more than 40 HD studies – more than any other research organization in the world – including the pivotal trials that led to all three (3) FDA approved treatments for symptoms of HD. HSG is also the only research organization that has a global network of over 130 trial-ready research sites credentialed by HSG to conduct HD research. Many of these sites have successfully and repeatedly contributed to HSG-led trials. The HSG-credentialed site relationships are solid and the cooperation is remarkable through all stages of a trial. HSG reinvests the net revenue generated from clinical trials into our mission-driven initiatives, including site education and training.
Make a Difference – Become an HSG Member!
Our goal for membership is to create a community of engaged and committed professionals in the world’s first and largest collaborative clinical research network in HD. Members share best practices, conduct trials and studies, attend conferences and meetings, and are eligible to participate with other HD thought leaders on advisory councils and working groups as part of a growing ecosystem of credentialed sites.
