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REGISTRATION FOR HSG 2020: HD IN FOCUS IS NOW OPEN!


The Huntington Study Group is the world’s first and largest clinical research network focused exclusively on Huntington disease.

OUR MISSION

The mission of the Huntington Study Group is to seek effective treatments that improve the quality of life for people affected by Huntington disease.

OUR IMPACT

The HSG conducted the clinical trials that led to the very first two and, as of 2020, only FDA-approved treatments for HD symptoms.

The HSG began the first and largest global observational study of HD patients, COHORT, which evolved into the current ENROLL-HD.

The HSG has helped train nearly 1,000 healthcare professionals and care providers through our in-person and online education programs on Huntington disease.

OUR JOURNEY

The HSG was founded in 1993 by Dr. Ira Shoulson and several colleagues at the University of Rochester. They believed the best way to combat this rare disease was to bring together all the researchers, experts, clinicians, and patients under one roof, to work together more effectively with industry, foundations, government agencies, and other partners to design controlled trials and studies in Huntington disease.

In the quarter-century since, the HSG has conducted more clinical trials and studies exclusively focused in Huntington disease than any other organization.