Advisory Councils are among the most important working forces of our organization. They serve to ensure action items pertinent to the success of HSG are carried out efficiently and effectively.
Advisory Councils are among the most important working forces of our organization, ensuring action items pertinent to the mission of HSG are carried out efficiently and effectively.
Clinical Advisory Council
Purpose: To provide direction to help clinicians and care team manage Huntington’s disease through development of clinical protocols, consensus statements, and best practices.
Chair: Dr. Jamie Adams
Co-Chair/Chair Elect: Dr. Ciaran Considine
Education Advisory Council
Purpose: To support and develop Huntington’s disease education-related initatives and programs.
Chair: Dr. Jee Bang
Co-Chair: Dr. Veronica Santini
Scientific Advisory Council
Purpose: To provide objective, independent review of clinical protocols, pre-clinical studies, clinical trial design, and HD-related scientific projects.
Chair: Dr. Chris Ross
Co-Chair/Chair-Elect: Aaron Lasker
Site Development Advisory Council
Purpose: To build, support, and strengthen HSG’s site network.
Chair: Robin Kuprewicz
Co-Chair/Chair-Elect: Amy Brown
FAQs
Q: Who can start an HSG Committee or Working Group?
A: HSG Committees are formed by Leadership. Any HSG member with Subjects Matter Expertise related to the subject of their project(s) can apply to start a new Working Group at HSG Working Group Application (smartsheet.com)
Q: Who can be on an HSG Committee or Working Group, and how are people selected?
A: Participation on HSG Committees and Working Groups is open to all HSG members. Chairs of Committees are appointed by the Executive Membership Committee Co-Chairs, then the Chairs select Committee members in consultation with the EMC Co-Chairs. Any HSG member with subject matter expertise related to the subject of the Working Group and its projects is eligible to participate in a Working Group. Anyone interested in joining an existing HSG Working Group should contact the Chair/Co-Chair to discuss.
Q: How many people can be on a Committee or Working Group?
A: The minimum number of Committee members is three. There is no minimum number of Working Groups members. Membership numbers other than the required minimums are at the discretion of the Chairs.
Q: Who can Chair or Co-Chair a Committee or Working Group?
A: Chairs of Committees are appointed by the Executive Membership Committee. Co-Chairs of Committees are not required and having a Co-Chair is at the discretion of the Committee Chair. Co-Chairs are appointed by Chairs.
Working Group Chairs are typically self-appointed (if applying to start a new Working Group) or asked to take over Chair/Co-Chair responsibilities by a current Chair/Co-Chair. Co-Chairs of Working Groups are not required and having a Co-Chair is at the discretion of the Working Group Chair.
Interested in forming a Working Group?
Want to start an HSG project or initiative?
Interested in joining an Advisory Council?
Contact info@hsglimited.org for more information.