HSG Staff

Huntington Study Group Staff

Shari Kinel, JD
HSG Executive Director

   (585) 242-0276

Shari has been the Executive Director to the Huntington Study Group since 2009. She is a graduate of Brandeis University and she earned a law degree from SUNY Buffalo. Shari manages the overall operations of HSG and oversees governance, grants, contracts, and key objectives and strategies of HSG. Since joining HSG, Shari has served on HD clinical trial steering committees, HD trial project teams and has dedicated a lot of her time working with HD care and community groups. Shari is an attorney who started her career at the US Department of Labor and the US Department of Justice in Washington, DC. She then joined Chase Manhattan’s Bank’s legal team and also spent time on the legal staff at Celltech Pharmaceuticals. Shari also had her own practice representing organizations in business matters involving regulatory compliance, contracts, and corporate policies and procedures.

 

Anne Van Dusen, CHC
HSG Director of Operations

   (585) 244-9487

Anne Van Dusen joined the HSG team in June of 2017 as the Director of Education & Special Programs and was promoted to the position of Director of Operations in 2018. She has developed and implemented educational plans that will sustain and help HSG to maintain its standing as a proven world leader in facilitating high quality clinical research trials and studies in Huntington disease. Van Dusen holds a BS from the University of Binghamton School of Management and is certified in healthcare compliance by the Compliance Certification Board. Prior to joining HSG, she held leadership roles in compliance and finance, most recently at CCSI of Rochester, ACM Medical Laboratory, and Lifetime Care Home Care and Hospice.

 

Kristin Strazdins
HSG Manager, Finance & Special Projects

   (585) 242-0967

Kristin Strazdins is the Manager, Finance & Special Projects and has worked for HSG since February 2014. She handles all accounting functions and manages the HSG office and human resource needs. She handled accounting functions and site payments for First/ARC, which produced the second FDA-approved drug for Huntington disease. For SIGNAL, she handles the site payments and accounting, and arranges travel, travel reimbursement, and participant payment for participants in the trial. Prior to working for HSG, Strazdins worked as a Staff Accountant in a public accounting firm for seven years.

 

Kevin Gregory
HSG Director of Education, Communication and Outreach

   (585) 244-8804

Kevin Gregory joined the Huntington Study Group in September 2018. He is responsible for the internet and social media presence for HSG, along with learning content and courseware development for HSG training programs. Prior to joining HSG, he was a Director on the Medicare appeals program at MAXIMUS, Inc. for thirteen years, and seven additional years of professional experience in e-learning and video production fields.