Care Education Videos

HD is a treatable disease, and HSG, its members, partners, sponsors, and families are seeking more treatments that make a difference and improve the quality of life for individuals and families living with HD. Only 15-25 percent of individuals with Huntington disease are cared for in an HD subspecialty care center, such as an HSG credentialed research site. That means that the vast majority of this complex care management is occurring in settings where coordinated care and subspecialty expertise may be difficult to find. To help health care providers better navigate caring for families with HD, HSG has created videos to give providers an introduction.  (Please see Disclaimer of Medical Advice below.)

Consider attending our Annual Meeting for further educational opportunities, CME credit, and networking with HD experts. Stay in the loop on research and educational offerings by joining HSG.

Introduction to Huntington disease

Learn the basics of Huntington disease from HSG member and neurologist Victor Sung, who explains that HD is a treatable disease.

Introduction to Juvenile-onset Huntington disease (JoHD)

Learn what makes Juvenile Huntington disease different from adult onset from HSG member and neurologist Martha Nance.

Genetic Testing for HD

Testing for Huntington disease is not just a simple blood test. HSG Member and neurologist Martha Nance explains the ideal ways to provide genetic testing and support for families at risk for HD.

Receiving a Diagnosis of HD

Get advice from HD experts on how they help families who have a new diagnosis of Huntington disease. The video features tips from HSG member and neurologist Martha Nance, HSG member and psychiatrist Mary Edmondson and HSG member and neurologist Daniel Claassen.

Disease Progression of HD

Learn the course, progression and stages of Huntington disease from HSG member and neurologist Martha Nance.

Treating Chorea in HD

Symptoms of HD are treatable. Learn the basics of how to treat chorea from HSG members and neurologists Martha Nance and Daniel Claassen. (Chorea care guide.)

Treating Irritability in HD

Symptoms of HD are treatable. One of the most challenging symptoms of HD is irritability or rage. Learn some coping strategies and pharmacologic treatments for irritability from HSG member and psychiatrist Mary Edmondson. (Irritability care guide.)

Treating Unawareness in HD

Symptoms of HD are treatable. Unawareness can be a frustrating symptom for family members, but HSG member and neurologist Martha Nance and HSG member and psychiatrist Mary Edmondson provide strategies for coping with it.

Treating Weight Loss in HD

Symptoms of HD are treatable. Weight loss can be a challenge to combat. HSG member and neurologist Martha Nance gives tips on how to maintain and gain weight.

Family Planning in HD

Having children when a couple is at risk of HD can be a complicated decision. Learn the options from HSG member and neurologist Martha Nance.

Care in Late-Stage HD

Late stage HD requires round-the-clock nursing care, which can be difficult to find because of the nature of Huntington disease. Get practical tips about how to care for individuals with late stage HD.

Disclaimer of Medical Advice:

You understand and acknowledge that all users of this website are responsible for their own medical care, treatment, and oversight. All of the content provided on the website, including text, treatments, dosages, outcomes, charts, profiles, graphics, photographs, images, advice, messages, and forum postings, are for informational purposes only and DOES NOT CONSTITUTE THE PROVIDING OF MEDICAL ADVICE and is not intended to be a substitute for independent professional medical judgment, advice, diagnosis, or treatment.

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Medical information changes constantly. Therefore the information on this website or on the linked websites should not be considered current, complete or exhaustive, nor should you rely on such information to recommend a course of treatment for you or any other individual. Reliance on any information provided on this website or any linked websites is solely at your own risk.

The HSG does not recommend or endorse any specific tests, products, procedures, opinions or other information that may be provided on the linked websites. The linked websites may contain text, graphics, images or information that you find offensive. HSG, its licensors and its suppliers have no control over and accept no responsibility for such materials.