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Other Past Studies

Making HD Voices Heard

Making HD Voices Heard was the first study hosted on the myHDstory® platform. This observational study captured data to represent how HD patients experience their symptoms and how the disease affects their wellbeing.
Learn more about Making HD Voices Heard
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A Phase 3, randomized, double-blind, placebo-controlled study to Evaluate the efficacy of valbenazine to reduce chorea associated with HD, evaluate the safety and tolerability of valbenazine in subjects with HD, and evaluate the ability of wearable movement sensors to detect changes in physical activity (optional activity).




A Phase II research trial for people who are at risk for Huntington Disease (HD) and have early signs of HD. The study will assess the safety, tolerability, and effectiveness of VX15 (a novel monoclonal antibody).

HD Care Improvement Project

The Griffin Foundation established the Huntington’s Disease Care Improvement Project (HDCIP) with the Huntington Study Group (HSG) early in 2017 to help understand and improve the care experience for Huntington disease (HD) patients and families.
Learn more about HD Care Improvement Project

Site Survey: Patients Supported by HD Centers (2019)

During March 2019, the HSG surveyed their 86 United States based sites (HD Centers), with 63 responding to reveal an average of 135 HD patients per center.
Learn more about Site Survey: Patients Supported by HD Centers (2019)
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A multinational, randomized, double-blind, placebo-controlled, parallel-group study to evaluate the efficacy and safety of laquininmod as treatment in patients with Huntington’s Disease.
Pride HD

The Pride-HD Study

Learn more about The Pride-HD Study
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A Randomized, Double Blind, Placebo Controlled Study of SD-809 Extended Release for the Treatment of Chorea associated with Huntington Disease for those currently taking tetrabenazine to treat chorea and “switch” to SD-809 ER.
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Crest-EHD Study

Creatine Safety, Tolerability, and Efficacy in Huntington’s disease.
Learn more about Crest-EHD Study
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Coenzyme Q10 (CoQ) in Huntington’s Disease.
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A Multi-Center, Tolerability Study of Coenzyme Q10 (UbiquinonE) in PREmanifest Huntington’s disease.
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A Multi-Center, Phase II Safety and Tolerability Trial of PBT2 in Patients with Early to Mid-stage HD.
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A Multi-Center, Study Comparing Three Doses Of ACR16 Versus Placebo for the Symptomatic Treatment of Huntington Disease.
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Observational Study of Neurobiological Predictors of Huntington’s Disease.