Consent to be Contacted for Future Research

• If you would like the Huntington Study Group (HSG) to contact you about future research information, please read and complete the consent form to be contacted for future research.

What is the purpose of this consent?

• Huntington Study Group (HSG) is conducting clinical research which seeks treatments that make a difference for Huntington disease (HD).
• HSG wants to help you learn more about their research studies, and to provide you with information on research that you may wish to participate in.
• By signing this form, you will allow qualified professionals on HSG’s staff to contact you with information on future research.
• You have no obligation to actually participate in any study.

What happens if I sign this form?

• If you sign this form, you are providing consent for HSG to collect your name and contact information and put it in a database to contact you via telephone, regular mail, or email about future clinical research opportunities.
• This information will be kept indefinitely, unless you withdraw your permission.
• You do not have to consider participating in a study that you are contacted about.
• You may withdraw permission at any time by contacting HSG at 1-800-487-7671 or at info@hsglimited.org.

What happens if I don’t complete the form?

• Not signing this form will have no influence on your ability to participate in any clinical research study.

Who will have access to my information?

• Access will be limited to HSG’s staff and will require a password.
• Your records will be handled as confidentially as possible.
• No information will be used for research without additional permission.
• Your contact information will not be shared with anyone outside of the HSG.

What do I do if I have questions, now or later?

• You can talk with HSG’s staff about any questions or concerns you have about this future contact database.
• Contact HSG at 1-800-487-7671 or at info@hsglimited.org.

Consent & Sign Up

Please click the button below to complete the consent form and sign up to be contacted about future research.

Learn More

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