By Kevin Gregory
Clinical teams and patients navigate genetic testing.
The manner in which people consume information has changed drastically in the digital age, particularly over the past five to ten years. One of the channels experiencing a dramatic growth in user adoption is podcasts. They check all the right boxes for a generation of people on the go: ability to stream to your computer or mobile device, to listen on-demand — when you want and where you want — and to connect with topics or subjects on a personal level by listening.
According to the website MusicOomph, 165 million people in the United States have listened to a podcast. On a monthly basis, 32 percent of the U.S. population listen to a podcast, while the average weekly listener consumes seven different podcasts, totaling about six and a half hours! So, it made sense for HD Insights to expand our core platform of a semi-annual printed publication by creating a companion podcast series.
Interested listeners can find the HD Insights Podcast for their device by using the following link (https://link.chtbl.com/HDInsightsPod), where they can download, subscribe, rate and review episodes. Listeners that subscribe to the podcast series automatically get the latest episodes downloaded to the device they subscribed from.
To help increase the potential reach for HD Insights content, the Huntington Study Group has created companion social media pages for HD Insights on Facebook and Twitter. Users can follow HD Insights on Facebook by the account name @HDInsights.org, or by searching for the handle titled @HD_Insights on Twitter. The social media channels are a great way to get quick-hitting updates on new articles, research, and our latest podcasts.
HD Insights Podcast Episodes
- The first episode was an interview with Dr. Daniel Claassen, editor of HD Insights, about his journey in HD research, how he sees HD care evolving, and how he got involved in HD Insights. Listeners will also come away with some insight on a couple of his personal passions: the viola and golf.
- Episode 2 Episode 2 featured Dr. Joseph Higgins from uniQure who talked about their novel therapy, AMT-130.
- Episode 3 Dr. Vicki Wheelock joined the podcast for Episode 3 to talk about her work at UC Davis and the active community in the greater Sacramento area ahead of HSG 2019: Navigating HD.
- Episode 4 includes an in-person conversation from the HDSA Annual Convention in Boston with Dr. Victor Sung from the University of Alabama at Birmingham
- Episode 5 debuts the same week as the HSG annual meeting and features a deeper discussion about the impact of HD on youth and genetic testing from Dr. Martha Nance.