27th Annual Meeting of the Huntington Study Group


October 29-31, 2020

The Huntington Study Group is taking the early and proactive step of moving this year’s annual meeting, HSG 2020: HD IN FOCUS, to a virtual experience during October 29-31, 2020. While we will not gather together this year in-person, we have developed an interesting, novel, and innovative program that will be brought to you anywhere you are located.

We will hold a highly engaging and interactive virtual online meeting using the Intrado INXPO platform. HSG 2020 will still provide many of the same experiences you are used to — but from the safety and comfort of your home or office which includes opportunities to network and interactive poster sessions, and much more, such as:

INTERACTIVE SESSIONS – plenary presentations, panel discussions, with live Q&A sessions sharing the latest in research and treatments.

● An exciting VIRTUAL FAMILY DAY symposium for HD families to hear from HD experts and community advocates.


● Virtual NETWORKING LOUNGES to meet up with, engage and collaborate with colleagues, friends, and experts.

● A simulated EXHIBIT HALL to engage with representatives from industry and advocacy.

● An interactive POSTER PAVILION to browse accepted research abstract posters, and engage with poster presenters at scheduled times.


All times listed are in Eastern Standard Time (EST). Times and topics are subject to change.

October 29, 2020 (Thursday) – General Sessions

  • 10:00 am – Welcome and Kickoff
  • 10:10 am – HSG State of the Union
  • 10:45 am – Somatic Instability
  • 11:15 am – Genetic Engineering Related to HD Therapeutics
  • 11:45 am – Poster Session/ Exhibit Hall/ Networking Lounge
  • 12:30 pm – Keynote “Zooming In on HD” – Dr. Sarah Tabrizi, UCL
  • 1:30 pm – JoHD
  • 2:00 pm – Poster Session/ Exhibit Hall/ Networking Lounge
  • 2:45 pm – HSG Working Group Presentations
  • 3:15 pm – Peter Como Symposium Platform Presentations
  • 3:45 pm – myHDstory
  • 4:15 pm – HD Innovators Forum

October 30, 2020 (Friday) – General Sessions

  • 10:00 am – Results of the SIGNAL Trial Evaluating the Safety and Efficacy of Pepinemab in Huntington’s Disease
  • 11:00 am – Impact of COVID-19 on Clinical Trials/ Telemedicine/ Siteless Trials
  • 11:30 am – PT/OT in HD
  • 12:00 pm – MCI
  • 12:30 pm – Behavior/Cognitive Case Studies Panel
  • 1:00 pm – Poster Session/ Exhibit Hall/ Networking Lounge
  • 1:15 pm – Clinical Trial Round Up Part 1; Ongoing Trials
  • 2:30 pm – Clinical Trial Round Up Part 2; What’s Coming?
  • 3:45 pm – HD-NET
  • 4:15 pm – HD Insights of the Year
  • 5:15 pm – Closing Remarks

October 31, 2020 (Saturday) – FAMILY DAY

  • 12:00 pm – Welcome
  • 1:00 pm – Breakout sessions
    • “I’m under 30 and I don’t have symptoms of HD”
      • 1:10 pm – Growing Up in an HD Family – Child Caregiving, Being At-Risk, Support for Kids
      • 1:45 pm – Impact of Being At-Risk on Big Decisions – Testing or Not, Marriage, Job, Reproduction
      • 2:20 – New Ideas/Tools for Research, Advocacy, Living Life Better
    • “HD is Here Today and I Have to Deal With It”
      • 1:10-1:40 – Why You Need a Team and How to Build One
      • 1:45-2:15 Planning for the Future—Financial and Medical Care Planning
      • 2:20-2:50 – New Ways to Address Behavioral Challenges
    • “Time is Passing”
      • 1:10-1:40 Living Well in the Later Stages of Life and the Later Stages of HD
      • 1:45-2:15 Death and Dying
      • 2:20-2:50 – “Put Your Own Mask on First Before Assisting Others”- Caring for Yourself as You Care for Someone Else
  • 2:50 pm – Beak/Poster Session/ Exhibit Hall/ Networking Lounge
  • 3:10 pm – Motivational Speaker
  • 3:45 pm – HD Research Blitz
  • 4:45 pm – Round Up and Closing Remarks

Venue & Registration

Stay tuned in the coming weeks for information regarding the online platform, registration information, and call for abstracts.

Abstracts and Virtual Poster Sessions

Attendees will “experience” a virtual event that mimics a similar live event. Abstract posters will be presented in a dedicated virtual exhibition hall. Once in the Poster exhibition hall, attendees will see the titles and a thumbnail image for each selected abstract. When an attendee navigates to a specific poster, they will be presented with an interface that can include a short introductory video, a headshot image of the presenter, a PDF to view the detailed poster, and a Q&A chat box to interact with the poster presenter.

Key Abstract Dates:

– Regular Abstract Submission Opens: May 28, 2020
– Regular Abstract Submission Closes: June 30, 2020
– Regular Abstract Selection Notification: August 31, 2020
– Late-breaking Abstract Submission: September 9-16, 2020*

*Late-Breaking Abstract Submission period will take place after key print deadlines, and therefore cannot be included in the publication of HSG 2020 Abstracts in Neurotherapeutics®. Poster presenters will still be welcome.

HSG 2020 Online Abstract Submission Form

Regular abstract submission period is now closed. Watch for late-breaking abstract submission link coming September 9th!

NEW: Disclosures for authors are REQUIRED in order to submit an abstract. Please be sure to obtain disclosures for authors prior to beginning your submission.

Abstract Guidelines

HSG 2020 Sponsorship Opportunities

If you are interested in having your organization highlighted as a sponsor of HSG 2020: HD IN FOCUS, the Huntington Study Group has updated sponsor packages with some exciting opportunities to maintain a consistent experience as our usual in-person event.

Download the HSG 2020 Detailed Sponsorship Packet.

Please contact Kristin Strazdins (kristin@hsglimited.org or 585.242.0967) for more information on becoming a sponsor.

HSG 2020 Sponsors

Thank you to all the sponsors of HSG 2020: HD IN FOCUS for helping make our annual meeting a (virtual) reality! We invite you to visit them at the annual meeting and learn more about what they are doing.

Gold Sponsors


Silver Sponsors

Bronze Sponsors

Friend Sponsors



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