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Join a Study

HSG has current, active opportunities to participate in a clinical trial. Some studies may be therapeutic trials (experimental or known compounds/drugs are used), while others may be observational studies (no drugs are used). Read the Clinical Trial FAQ to learn more.

If you are interested in taking part in a study, the HSG can help you determine what trial might be right for you. Please contact an HSG Research Site or the the Huntington Study Group directly by phone 800-487-7671 (toll free from the U.S. and Canada) or email (info@hsglimited.org) for more information.

If you would prefer to have HSG reach out to you about new research opportunities, please register for myHDstory® and we will contact you about future clinical trials and observational studies.

myHDstory®

Status: Platform Registration Open

myHDstory® is an online research project sponsored by the Huntington Study Group (HSG). It will help us to understand how Huntington disease (HD) affects patients, care partners, and those at genetic risk for HD. myHDstory® was created as a research platform to enable people impacted by Huntington’s disease to report their symptoms and voice their priorities.

Learn more about myHDstory®

Register for myHDstory® to be eligible for upcoming studies

Project AWARE 2.0

Status: Currently Enrolling

To Improve Awareness, Willingness and Ability for Research and Enrollment in Clinical Research Enroll Now What is the Project AWARE 2.0 Survey? Project AWARE 2.0 is a pivotal study aimed at enhancing the design and implementation of drug trials and observational studies for Huntington’s disease (HD). By participating, you contribute valuable insights that help researchers […]

Learn more about Project AWARE 2.0

Contact me about this trial or future research

Register at myHDstory.org

LEAD-HD

Status: Currently Enrolling

Longitudinal Endpoint Assessment of Disease Burden in HD Enroll Now What is LEAD-HD? LEAD-HD will enable approximately 300 individuals with HD or prodromal HD to participate in a 24-month longitudinal natural history study using remote technologies to complete the Huntington’s Disease Health Index (HD-HI), the HD Patient Report of Problems (HD-PROP), a Health Literacy Survey and self-reported Total […]

Learn more about LEAD-HD

Contact me about this trial or future research

Register at myHDstory.org

KINECT-HD2

Status: Enrollment Closed

An Open-Label Rollover Study for Continuing Valbenazine Administration for the Treatment of Chorea Associated with Huntington Disease.

Learn more about KINECT-HD2

Contact me about this trial or future research

PROOF-HD

Status: Enrollment Closed

A Phase 3, randomized, double-blind, placebo-controlled study evaluating the efficacy and safety of pridopidine in patients with early stage of Huntington disease.

Learn more about PROOF-HD

Contact me about this trial or future research

For more information visit clinicaltrials.gov or hdtrialfinder.org