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Join a Study

HSG has current, active opportunities to participate in a clinical trial. Some studies may be therapeutic trials (experimental or known compounds/drugs are used), while others may be observational studies (no drugs are used). Read the Clinical Trial FAQ to learn more.

If you are interested in taking part in a study, the HSG can help you determine what trial might be right for you. Please contact an HSG Research Site or the the Huntington Study Group directly by phone 800-487-7671 (toll free from the U.S. and Canada) or email (info@hsglimited.org) for more information.

If you would prefer to have HSG reach out to you about new research opportunities, please register for myHDstory® and we will contact you about future clinical trials and observational studies.

myHDstory®

Status: Platform Registration Open

myHDstory® is an online research project sponsored by the Huntington Study Group (HSG). It will help us to understand how Huntington disease (HD) affects patients, care partners, and those at genetic risk for HD. myHDstory® was created as a research platform to enable people impacted by Huntington’s disease to report their symptoms and voice their priorities.

Learn more about myHDstory®

Register for myHDstory® to be eligible for upcoming studies

LEAD-HD

Status: Currently Enrolling

Enroll Now Longitudinal Endpoint Assessment of Disease Burden in HD What is LEAD-HD? LEAD-HD will enable approximately 300 individuals with HD or prodromal HD to participate in a 24-month longitudinal natural history study using remote technologies to complete the Huntington’s Disease Health Index (HD-HI), the HD Patient Report of Problems (HD-PROP), a Health Literacy Survey and self-reported Total […]

Learn more about LEAD-HD

Contact me about this trial or future research

Register at myHDstory.org

XN45617

Status: Currently Enrolling

Purpose of the XN45617 Study This research study is being done to learn if RO7814278 is safe and can help people with Huntington’s disease (HD). HD can be passed down from parents to their children through their genes. People with HD have too many sets for creating a particular combination of C, A, and G, […]

Learn more about XN45617

Contact me about this trial or future research

For more information visit clinicaltrials.gov or hdtrialfinder.org