A Clinical Study for Huntington’s Disease Chorea
Active Study Locations
The following list includes all KINECT-HD study locations that have been activated and are currently enrolling participants. This list will be updated as additional study locations are activated.
If you are interested in participating in KINECT-HD, please contact a site nearest to you directly. Study center personnel will determine your eligibility to participate in the KINECT-HD study.
If you are in need or further assistance regarding the study, please contact the Huntington Study Group:
Call Toll-Free (North America): 800-487-7671
Email: info@hsglimited.org
UNITED STATES
| State | City | Location | Contact Information |
|---|---|---|---|
| Alabama | Birmingham | University of Alabama at Birmingham | Courtney Blair, Study Site Coordinator Phone: (205) 975-2894 |
| Arkansas | Little Rock | University of Arkansas for Medical Sciences | Anja Rassmann, Study Site Coordinator Phone: (501) 398-8622 Email: ARassmann@uams.edu |
| California | Sacramento | University of California, Davis Medical Center | Becky Craig, Study Site Coordinator Phone: (916) 734-3541 Email: rscraig@ucdavis.edu |
| San Diego | University of California, San Diego | Email: jcoreybloom@ucsd.edu Phone: (858) 249-0569 | |
| Colorado | Denver | University of Colorado, Denver | Dr. Lauren Seeberger, Study Site Investigator Site Phone: (303) 724-4717 Site Email: kendra.kirby@cuanschutz.edu |
| Englewood | Rocky Mountain Movement Disorders Center | Jessica Jaynes, Study Site Coordinator Phone: (303) 357-5456 | |
| District of Columbia (D.C.) | Washington | Georgetown University | Robin Kuprewicz, Study Site Coordinator Phone: (202) 687-6419 Email: rk1028@georgetown.edu |
| Florida | Gainesville | University of Florida | Kyle Rizer, Study Site Coordinator Phone: (352) 733-2426 |
| Miami | University of Miami | Dr. Henry Moore, Study Site Investigator Phone: (305) 243-6732 (24 hours) Letty Ginsburg, Study Site Investigator Phone: (305) 243-1942 Email: lginsburg@med.miami.edu | |
| Georgia | Atlanta | Emory University | Elaine Sperin, Study Site Coordinator Email: esperin@emory.edu |
| Illinois | Chicago | Northwestern University | ZsaZsa Brown, Study Site Coordinator Phone: (312) 503-4121 Email: zsazsa.brown@northwestern.edu |
| Chicago | Rush University Medical Center | Phone: (312) 563-5563 Email: Jacob_Hawkins@rush.edu | |
| Indiana | Indianapolis | Indiana University | Andrea Hurt, Study Site Coordinator Email: andhurt@iupui.edu Phone: (317) 963-7449 |
| Iowa | Iowa City | University of Iowa, Carver College of Medicine | |
| Kansas | Wichita | Hereditary Neurological Disease Centre | Gregory Suter, Study Site Coordinator Phone: (888) 232-4632 |
| Kansas City | University of Kansas Medical Center | Carolyn Gray, Study Site Coordinator Phone: (913) 588-6983 Email: cgray1@kumc.edu | |
| Kentucky | Louisville | University of Louisville | Annette Robinson, Study Site Coordinator Email: annette.robinson@louisville.edu |
| Louisiana | New Orleans | Ochsner Clinic Foundation | Kristina Brown, Study Site Coordinator Dr. David Houghton, Study Site Investigator Email: Kristina.brown@ochsner.org |
| Massachusetts | Boston | Beth Israel Deaconess Medical Center | Sophia Antonioli, Study Site Coordinator Email: hdresearch@bidmc.harvard.edu |
| Boston | Boston University Medical Center | Raymond James, Study Site Coordinator Phone: (617) 638-7745 Email: rcjames@bu.edu | |
| Boston | Massachusetts General Hospital | Dr. Diana Rosas, Study Site Investigator Phone: (617) 726-9045 | |
| Michigan | Ann Arbor | University of Michigan | Dr. Praveen Dayalu, Study Site Investigator Angela Stovall, Study Site Coordinator Email: astovall@med.umich.edu |
| West Bloomfield | Henry Ford West Bloomfield Hospital | Rachel Shagena, Study Site Coordinator Email: rshagen1@hfhs.org Phone: (248) 325-1358 Address: 6777 W. Maple Rd. – Room 2044, West Bloomfield, MI 4832 | |
| Nebraska | Omaha | University of Nebraska Medical Center | Sheryl Houston, Study Site Coordinator Phone: (402) 836-9405 Email: sheryl.houston@unmc.edu |
| North Carolina | Durham | Duke University | Dr. Burton Scott, Study Site Investigator McKenzie Luxmore, Study Site Coordinator Email: mckenzie.luxmore@duke.edu Phone: (919) 684-0865 |
| North Dakota | Fargo | Sanford Health | Phone: (701) 234-2474 |
| New York | Buffalo | University of Buffalo | |
| Rochester | University of Rochester | Amy Chesire, Study Site Coordinator Email: amy_chesire@urmc.rochester.edu Phone: (585) 341-7159 | |
| Ohio | Cleveland | The Cleveland Clinic Foundation | Rhiannon Regal, Study Site Coordinator Email: regalr@ccf.org Phone: (440) 413-3861 |
| Columbus | Ohio State University | Allison Daley, Study Site Coordinator Email: allison.daley@osumc.edu | |
| Toledo | University of Toledo | Kristen Schuchmann, Patient Manager Phone: (419) 383-6737 Email: kristen.schuchmann@utoledo.edu | |
| Pennsylvania | Pittsburgh | University of Pittsburgh Medical Center | Patty Conlon, Study Site Coordinator Phone: (412) 692-2394 Email: patricia.conlon@pitt.edu |
| South Carolina | Charleston | Medical University of South Carolina | |
| Columbia | University of South Carolina School of Medicine | ||
| Greenville | Prisma Health (Upstate) | Dr. Enrique Urrea-Mendoza, Study Site Coordinator Phone: (864) 454-5076 | |
| Tennessee | Nashville | Vanderbilt University Medical Center | Dr. Katherine McDonell, Study Site Investigator Danielle Buchanan, Study Site Coordinator Email: danielle.a.buchanan@vumc.org Phone: (615) 875-3274 |
| Texas | Houston | University of Texas Health Science Center, Houston | Christine Farrell, Study Site Coordinator Email: christine.m.farrell@uth.tmc.edu Phone: (713) 486-0527 |
| Utah | Salt Lake City | University of Utah | Kendra Fowler, Study Site Coordinator Phone: (801) 581-7828 Email: Kendra.fowler@utah.edu |
| Vermont | Burlington | University of Vermont | Katherine Chan, Study Site Coordinator Phone: (802) 847-1597 Email: Katherine.chan@uvmhealth.org Emily Houston, Study Co-Coordinator Phone: (802) 656-8974 Email: Emily.houston@med.uvm.edu |
| Virginia | Charlottesville | University of Virginia | |
| Washington | Seattle | University of Washington | Debra Del Castillo, Study Site Coordinator Phone: (206) 543-3647 Email: debradel@uw.edu |
| Spokane | Inland Northwest Research | Dr. Jason Aldred, Study Site Investigator Phone: (509) 960-2818 Email: contact@inwresearch.com |
CANADA
| Province | City | Location | Contact Information |
|---|---|---|---|
| British Columbia | Vancouver | University of British Columbia | Dr. Lynn Raymond, Study Site Investigator Email: Raymond-lynn.raymond@ubc.ca Phone: (604) 822-7366 Mike Adurogbangba, Study Site Coordinator Email: madurogbangba@cmmt.ubc.ca Phone: (604) 822-4872 |
| Ontario | Ottawa | Ottawa Hospital Civic Site | Melissa Allaire, Study Site Coordinator Email: meallaire@ohri.ca Phone: (613) 737-8899, EXT 10639 |
| Toronto | North York General Hospital | Dr. Philippe Rizek, Study Site Investigator Clare Gibbons, Study Site Coordinator Phone: (416) 756-6788 Email: clare.gibbons@nygh.on.ca |