Living with HD

Living with HD

Huntington disease (HD) is a neurological disorder that affects 1 in 30,000 Americans. It is considered a rare hereditary disorder. But if you are the 1 in 30,000 it’s not rare; it’s part of your daily life, your family’s daily life, and likely a part of your descendants’ lives as well.

Research into better understanding HD and seeking effective treatments is more active now than at any other time since George Huntington discovered the disease in 1872. HD clinics around the world are creating more comprehensive care teams, including neurologists, social workers and psychologists, genetic counselors, PT/OT and speech pathologists.

Now is a time of hope for those affected by HD. HSG is part of a global community dedicated to improving HD treatment; you are not in this alone. But we need your help, we can’t do this without you.

One of the best things you can do to impact the future of HD treatment and research is participate in clinical trials and studies, if you are able. Check out HSG’s current trials, and sign up to be contacted about future HSG trials. Visit HDSA’s and NIH’s websites to find more opportunities.

Click here to complete the form to be contacted about HSG research opportunities.