Meet the Huntington Study Group (HSG) Team

The Huntington Study Group (“HSG”) is a not-for-profit, mission-driven parent organization with a wholly owned subsidiary, HSG Clinical Research, Inc. (“HSGCR”), that conducts clinical trials as a specialized clinical research organization (“CRO”). Each arm of the organization has a Board of Directors, which are currently mirror Boards (i.e., have the same members). HSG staff work in collaboration with leadership to fulfill the visions of both arms of the organization.


HSG & HSG Clinical Research, Inc.  

Board Members 

Peter Schmidt, PhD
Board Chair
Senior Vice President, Government Partnerships: Rho, Inc.
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William Hoh
Board Vice Chair
Managing Director of M&A and Strategic Advisory Services: H.C. Wainwright
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Joni Steinman
Board Treasurer
Senior Consultant/Life Sciences, Strategic Interests, LLC
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Shari Kinel, JD
Board Secretary
CEO, Huntington Study Group
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Arvind Sreedharan
Board Member
Senior Vice President, Business Operations: Neurogene
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Executive Team

Shari Kinel, JD
Chief Executive Officer
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Andrew Feigin, MD
Chief Medical Officer
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Elise Kayson, MS, ANP
VP Clinical Trial Operations
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Christopher Ross, MD, PhD
Chief Scientific Officer
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Anne Van Dusen, CHC
Chief Operating Officer
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Brett Kinsler, DC
Chief Innovation Officer
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Michael Lentine, MBA
Chief Financial Officer
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Executive Membership Committee

The primary purposes of the Executive Membership Committee (“EMC”) are to provide leadership, guidance, and advice on the mission-driven strategies and initiatives of the HSG, and to assist HSG staff with planning the programming of the Annual Meeting. The EMC represents the interests of the HSG global network of members, sites, families, sponsors, and the broader Huntington’s disease community on behalf of the HSG.


Samuel Frank, MD
Co-Chair, HSG Executive Membership Committee 
Beth Israel Deaconess Medical Center
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Sandra Kostyk, MD, PhD
Co-Chair, HSG Executive Membership Committee 
The Ohio State University
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Stephen Aradi, MD
Appointed HSG Investigator
Chair, HSG Site & Member Development Committee  
University of South Florida
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Jee Bang, MD, MPH 
Elected HSG Investigator
Chair, HSG Provider Education Committee
Johns Hopkins University
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Zsa Zsa Brown
Appointed HSG Coordinator
Liaison, HSG Working Groups  
Northwestern University
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E.J. Garner
Appointed HD Community Member
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Clement Loy, PhD, MBA
Appointed HSG Investigator
Chair, HSG Publications Committee 
Macquarie University, Australia
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Martha Nance, MD
Appointed HSG Investigator 
Chair, HSG Family Education Committee
Park Nicollet Health Services, Huntington’s Disease Center of Excellence at Hennepin County Medical Center
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Bernard Ravina, MD, MS
Appointed Industry Member
Atlas Venture
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Elaine Sperin, LPN, CRC III
Elected HSG Coordinator
Co-Chair, HSG Credentials Committee
Emory University
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HSG STAFF

Melissa Austin, LPN
Senior Clinical Project Manager
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Sue Bennett
Associate Clinical Project Manager
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Emma Berkner
Manager of Creative Services and Communications
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Ralph Busoye, MSc 
Senior Clinical Research Associate
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Kristin Coffan 
Senior Clinical Project Manager
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Lisa de Blieck, MPA, CCRC 
Director, Project Management
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Lynn Denise 
Information Analyst
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Lauren Falanga 
Manager, Compliance & Education
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Jody Goldstein 
Director, Clinical Operations
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Kristin Keyes 
Manager, Corporate Communications and Governance
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Pamela Knab 
Staff Accountant
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Jeffrey Mann
Director, Quality Assurance
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Carrie Martin 
Regulatory Document Specialist
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Janine Mercandetti 
Senior Manager, Contracts and Projects
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Kelley Morgan 
Senior Clinical Project Manager
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Sharon Recore 
Administrative Assistant and Membership Coordinator
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Victoria Rucinski 
Senior Clinical Project Manager
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Julia Spears, CCRC 
Associate Clinical Project Manager
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Kristin Strazdins 
Senior Manager, Organization Operations & Planning
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Chris Weaver 
Senior Clinical Research Associate
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