Meet the Huntington Study Group (HSG) Team
The Huntington Study Group (“HSG”) is a not-for-profit, mission-driven parent organization with a wholly owned subsidiary, HSG Clinical Research, Inc. (“HSGCR”), that conducts clinical trials as a specialized clinical research organization (“CRO”). Each arm of the organization has a Board of Directors, which are currently mirror Boards (i.e., have the same members). HSG staff work in collaboration with leadership to fulfill the visions of both arms of the organization.

HSG & HSG Clinical Research, Inc.
Board Members
Executive Team

Shari Kinel, JD
Chief Executive Officer
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Andrew Feigin, MD
Chief Medical Officer
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Elise Kayson, MS, ANP
VP Clinical Trial Operations
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Christopher Ross, MD, PhD
Chief Scientific Officer
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Anne Van Dusen, CHC
Chief Operating Officer
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Brett Kinsler, DC
Chief Innovation Officer
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Michael Lentine, MBA
Chief Financial Officer
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Executive Membership Committee
The primary purposes of the Executive Membership Committee (“EMC”) are to provide leadership, guidance, and advice on the mission-driven strategies and initiatives of the HSG, and to assist HSG staff with planning the programming of the Annual Meeting. The EMC represents the interests of the HSG global network of members, sites, families, sponsors, and the broader Huntington’s disease community on behalf of the HSG.

Samuel Frank, MD
Co-Chair, HSG Executive Membership Committee
Beth Israel Deaconess Medical Center
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Sandra Kostyk, MD, PhD
Co-Chair, HSG Executive Membership Committee
The Ohio State University
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Stephen Aradi, MD
Appointed HSG Investigator
Chair, HSG Site & Member Development Committee
University of South Florida
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Jee Bang, MD, MPH
Elected HSG Investigator
Chair, HSG Provider Education Committee
Johns Hopkins University
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Zsa Zsa Brown
Appointed HSG Coordinator
Liaison, HSG Working Groups
Northwestern University
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E.J. Garner
Appointed HD Community Member
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Clement Loy, PhD, MBA
Appointed HSG Investigator
Chair, HSG Publications Committee
Macquarie University, Australia
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Martha Nance, MD
Appointed HSG Investigator
Chair, HSG Family Education Committee
Park Nicollet Health Services, Huntington’s Disease Center of Excellence at Hennepin County Medical Center
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Bernard Ravina, MD, MS
Appointed Industry Member
Atlas Venture
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Elaine Sperin, LPN, CRC III
Elected HSG Coordinator
Co-Chair, HSG Credentials Committee
Emory University
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HSG STAFF

Melissa Austin, LPN
Senior Clinical Project Manager
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Sue Bennett
Associate Clinical Project Manager
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Emma Berkner
Manager of Creative Services and Communications
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Ralph Busoye, MSc
Senior Clinical Research Associate
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Kristin Coffan
Senior Clinical Project Manager
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Lisa de Blieck, MPA, CCRC
Director, Project Management
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Lynn Denise
Metrics Development & Performance Improvement Coordinator
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Lauren Falanga
Manager, Compliance & Education
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Jody Goldstein
Director, Clinical Operations
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Andrea Hurt
Associate Clinical Project Manager
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Kristin Keyes
Manager, Corporate Communications and Governance
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Pamela Knab
Staff Accountant
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Jeffrey Mann
Director, Quality Assurance
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Carrie Martin
Regulatory Document Specialist
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Janine Mercandetti
Senior Manager, Contracts and Projects
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Kelley Morgan
Senior Clinical Project Manager
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Sharon Recore
Administrative Assistant and Membership Coordinator
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Victoria Rucinski
Senior Clinical Project Manager
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Julia Spears, CCRC
Associate Clinical Project Manager
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Kristin Strazdins
Senior Manager, Organization Operations & Planning
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Chris Weaver
Senior Clinical Research Associate
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