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NewsHSG UPDATES: HSG Executive Membership Committee Elected Co-Chairs Begin in New Role

July 2022

On May 12, 2022, Sandra Kostyk (Ohio State) and Sam Frank (Beth Israel Deaconess Medical Center) were elected to serve as Co-Chairs of the Executive Membership Committee (EMC) of the nonprofit Huntington Study Group LTD (HSG). We are pleased to now officially welcome Sandra and Sam into their new role as of July 1, 2022.

This is an exciting and evolving time for the organization. While the HSG launched a wholly-owned for-profit entity in HSG Clinical Research, Inc. (HSGCR) dedicated exclusively to clinical research operations, the nonprofit will continue to rely on our membership to drive its mission driven focus. That mission includes providing premier educational content in Huntington disease (CME4HD™), ongoing training for HSG members (HSG Member Ed), credentialing researchers for clinical trials, and leading innovations in HD research through efforts like the vUHDRS®.

“In their role as Co-Chairs of the EMC, Sandra and Sam will spearhead initiatives to further enhance our core mission as a nonprofit,” said Shari Kinel, CEO of the Huntington Study Group. “We look forward to their collaborative leadership with our members and staff to ensure the HSG continues to make a difference for the entire HD community.”

The new HSG EMC Co-Chairs will begin their term with an orientation to the overall governance structure of the organization, working toward nominating candidates for open EMC positions and filling open HSG subcommittee positions.