Burden of HD Chorea [Español]
Estudios en curso: Carga informada por el paciente y el cuidador de la enfermedad de corea de Huntington (HD) y efecto de la deutetrabenazina (DTBZ) en el tratamiento de los síntomas y la calidad de vida (QoL) El estudio Carga informada por el paciente y el cuidador de la enfermedad de corea de Huntington (HD) […]
Burden of HD Chorea
Patient & Caregiver Reported Burden of Huntington’s Disease (HD) Chorea and Effect of Deutetrabenazine (DTBZ) on Symptom Management and Quality of Life (QoL) Patient & Caregiver Reported Burden of Huntington’s Disease (HD) Chorea and Effect of Deutetrabenazine (DTBZ) on Symptom Management and Quality of Life (QoL), will enable approximately 125 individuals with self-reported movements related […]
Project AWARE 2.0
To Improve Awareness, Willingness and Ability for Research and Enrollment in Clinical Research What is the Project AWARE 2.0 Survey? Project AWARE 2.0 is a pivotal study aimed at enhancing the design and implementation of drug trials and observational studies for Huntington’s disease (HD). By participating, you contribute valuable insights that help researchers understand the […]
LEAD-HD
Enroll Now Longitudinal Endpoint Assessment of Disease Burden in HD What is LEAD-HD? LEAD-HD will enable approximately 300 individuals with HD or prodromal HD to participate in a 24-month longitudinal natural history study using remote technologies to complete the Huntington’s Disease Health Index (HD-HI), the HD Patient Report of Problems (HD-PROP), a Health Literacy Survey and self-reported Total […]
Making HD Voices Heard
Making HD Voices Heard was the first study hosted on the myHDstory® platform. This observational study captured data to represent how HD patients experience their symptoms and how the disease affects their wellbeing.