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PRidopidine Outcome On Function in Huntington Disease (PROOF-HD)
ACTIVE PROOF-HD STUDY LOCATIONS
The following list includes all PROOF-HD study locations that have been activated and are currently enrolling participants. This list will be updated as additional study locations are activated.
If you are interested in participating in PROOF-HD, please contact the HSG to be connected to a site nearest to you. Study center personnel will determine your eligibility to participate in the PROOF-HD study.
Contact North American Sites
Call Toll-Free (North America only): 800-487-7671
Email (North America only): info@hsglimited.org
Contact European Sites
Direct contact information (phone and/or email) for European sites will be provided in the table below for each site as they are activated.
NORTH AMERICA
Canada
| Province | City | Location | Contact Information |
|---|---|---|---|
| Alberta | Calgary | University of Calgary | Lorelei Tainsh, Study Site Coordinator Phone: (403) 220-8413 Email: derwent@ucalgary.ca |
| British Columbia | Vancouver | University of British Columbia | Mike Adurogbangba, Study Site Coordinator Email: madurogbangba@cmmt.ubc.ca Phone: (604) 822-4872 |
| Nova Scotia | Halifax | Halifax Infirmary QEII Health Services Center | Madie El-aghil, Study Site Coordinator Phone: (902) 431-8783 Ext: 115 Email: madie.el-aghil@truenorthcr.com |
| Quebec | Montreal | CHUM Hospital of Notre Dame | Vicky Thiffault, Study Site Coordinator Phone: (514) 890-8000, ext 15921 Email: vicky.thiffault.chum@ssss.gouv.qc.ca |
United States
| State | City | Location | Contact Information |
|---|---|---|---|
| California | Sacramento | University of California, Davis (UC Davis) Medical Center | Becky Craig, Study Site Coordinator Phone: (916) 734-3541 Email: rscraig@ucdavis.edu |
| San Diego | University of California, San Diego (UCSD) | Email: jcoreybloom@ucsd.edu Phone: (858) 249-0569 | |
| Colorado | Englewood | Rocky Mountain Movement Disorder Center | Jessica Jaynes, Study Site Coordinator Phone: (303) 357-5456 |
| District of Columbia (D.C.) | Washington | Georgetown University | Robin Kuprewicz, Study Site Coordinator Phone: (202) 893-1115 Email: rk1028@georgetown.edu |
| Florida | Gainesville | University of Florida | Kyle Rizer, Study Site Coordinator Phone: (352) 733-2426 Email: kyle.rizer@neurology.ufl.edu |
| Tampa | University of South Florida | Kelly (Kolleen) Elliott, Study Site Coordinator Email: kelliot@usf.edu | |
| Georgia | Atlanta | Emory University | Elaine Sperin, Study Site Coordinator Email: esperin@emory.edu |
| Illinois | Chicago | Northwestern University | ZsaZsa Brown, Study Site Coordinator Phone: (312) 503-4121 Email: zsazsa.brown@northwestern.edu |
| Kansas | Kansas City | University of Kansas Medical Center | Carolyn Gray, Study Site Coordinator Phone: (913) 588-6983 Email: cgray1@kumc.edu |
| Wichita | Hereditary Neurological Disease Centre | Gregory Suter, Study Site Coordinator Phone: (888) 232-4632 | |
| Kentucky | Louisville | University of Louisville | Annette Robinson, Study Site Coordinator Email: annette.robinson@louisville.edu |
| Maryland | Baltimore | Johns Hopkins University | Kia Ultz, Study Site Coordinator Phone: (410) 955-1349 Email: kcarte23@jhmi.edu |
| Massachusetts | Boston | Beth Israel Deaconess Medical Center | Sophie Antonioli, Study Site Coordinator Phone: (617) 667-2355 Email: hdresearch@bidmc.harvard.edu |
| Boston | Massachusetts General Hospital | Dr. Diana Rosas, Study Site Investigator Phone: (617) 726-9045 | |
| Missouri | St. Louis | Washington University, St. Louis | Matthew Lewis, Study Recruitment Phone: (314) 747-5916 Email: lmatthew@wustl.edu |
| New York | Albany | Albany Medical College | Email: evanss@amc.edu |
| New York City | Columbia University | Miles DeGrazia, Study Site Coordinator Email: MQD2103@cumc.columbia.edu | |
| North Carolina | Durham | Duke University | McKenzie Luxmore, Study Site Coordinator Email: mckenzie.luxmore@duke.edu Phone: (919) 684-0865 |
| Ohio | Cincinnati | University of Cincinnati | Christina Gruenwald, Study Site Coordinator Phone: (513) 558-0112 Email: gruenwcm@ucmail.uc.edu |
| Columbus | Ohio State University | Casey Mitchell, Study Site Coordinator Email: casey.mitchell@osumc.edu Phone: (614) 685-9906 Katherine Ambrogi, Study Site Coordinator Email: katherine.ambrogi@osumc.edu Phone: (614) 688-6685 | |
| Oregon | Portland | Oregon Health & Sciences University | Keenan Ashby, Study Site Coordinator Phone: (503) 494-7245 Email: ashbyk@ohsu.edu |
| Pennsylvania | Philadelphia | University of Pennsylvania | Jennifer Klapper, Study Site Coordinator Phone: (215) 829-5176 |
| Tennessee | Nashville | Vanderbilt University Medical Center | Dr. Daniel Claassen, Study Site Investigator Danielle Buchanan, Study Site Coordinator Email: danielle.a.buchanan@vumc.org Phone: (615) 875-3274 |
| Texas | Houston | University of Texas, Houston | Jamie Sims, Study Site Coordinator Phone: 713-500-7763 Email: Jamie.Sims@uth.tmc.edu |
| Virginia | Richmond | Virginia Commonwealth University | Kelly Huckstep, Study Site Coordinator Phone: (804) 965-4283 Email: kelly.huckstep@vcuhealth.org |
| Washington | Seattle | University of Washington | Debra Del Castillo, Study Site Coordinator Phone: (206) 543-3647 Email: debradel@uw.edu |
EUROPE
| Country | City | Location | Contact |
|---|---|---|---|
| Austria | Innsbruck | Medizinische Universität Innsbruck | Dora Valent, Study Site Coordinator Phone: 0512 504 83237 Email: dora.valent@tirol-kliniken.at |
| Czech Republic | Prague | Centrum extrapyramidových onemocnění | Jiri Klempir, MD, Study Site Investigator Tel: +420 732 273 271 Email: Jiri.Klempir@seznam.cz |
| France | Lille | Centre Hospitalier Universitaire (CHU) of Lille – Hôpital Roger Salengro | Eric Decorte, Study Site Coordinator Email: eric.decorte@chru-lille.fr |
| Marseille | Hôpitaux Universitaires de Marseille Timone | Email: Laura Laura.MUNDLER@ap-hm.fr | |
| Paris | Centre Hospitalier Universitaire (CHU) Henri Mondor | Tiffany Monnier, Study Site Coordinator Tel. 01.49.81.37.93 | |
| Germany | Aachen | Euregional Huntington Center Aachen (EHZA) | Maha Sagar, Study Site Coordinator Email: NeuroStudien@ukaachen.de Tel: +49 241 80 80697 |
| Bochum | Huntington Center North Rhine-Westphalia, Department of Neurology, Ruhr-University Bochum, St. Josef-Hospital Bochum | Email: d.kaminski@klinikum-bochum.de Tel.: +49-234-509-2703 | |
| Lübeck | University of Lübeck | Saruhi Surnaschjan, Study Site Coordinator Phone:+49 451 50043497 Email: saruhi.surnaschjan@neuro.uni-luebeck.de | |
| Münster | George Huntington Institut | Tel: +49 251 7887880 Email: info@ghi-muenster.de | |
| Taufkirchen (Vils) | Kbo-Isar-Amper-Klinikum Taufkirchen (Vils) | Michael Bachmaier, Study Site Coordinator Email: Michael.Bachmaier@kbo.de Tel: 08084-934-417 | |
| Ulm | Universitätsklinikum Ulm, Abt. Neurologie | Study Site Coordinators: Sonja Trautmann Tel: +49 731 50063083 Ariane Schneider Tel: +49 731 50063126 | |
| Italy | Bari | Universita’ di Bari | |
| Bologna | IRCCS Istituto delle Scienze Neurologiche di Bologna | Tel: +393387367104 Email: unitastudiclinici@ausl.bologna.it | |
| Milano | Fondazione IRCCS Istituto Neurologico Carlo Besta | Tel: +39 02 23942519 Email: centroHD@istituto-besta.it | |
| Naples | Università di Napoli Federico II | Email: centrohd.unina@gmail.com Tel: +39 081 5455213 | |
| Roma | CSS-Mendel Institute at IRCCS Casa Sollievo della Sofferenza Research Hospital | Tel: +39 06 44700887 Email: info@lirh.it | |
| Netherlands | Leiden | Leiden University Medical Center | Tel: 0031715265442 Email: huntington@lumc.nl |
| Maastricht | Maastricht University | Dr. Mayke Oosterloo, Study Site Investigator Phone: 0031-(0)43-387 76 76, Email: expertisecentrumhuntington@mumc.nl | |
| Poland | Gdansk | Szpital Specjalistyczny Swietego Wojciecha | Agnieszka Konkel, Study Site Coordinator Tel: +48 609 952 555 Email: konkel1989@gmail.com |
| Krakow | Krakowska Akademia Neurologii | Email: centrum@neurologia.org.pl Tel: +48 12 426 92 80 | |
| Warsaw | Instytut Psychiatrii i Neurologii | Grzegorz Witkowski, Study Site Investigator Email: gwitkowski@ipin.edu.pl Phone: +48694904208 | |
| Spain | Barcelona | Hospital de la Santa Creu i Sant Pau | Dr. Jaime Kulisevsky Email: JKulisevsky@santpau.cat Tel: +34 649 14 23 60 |
| Burgos | Burgos Foundation for Health Research | Tel: +34 947 28 18 00 ext 35380 Email: jessicajrp@hubu.es, mcubo@saludcastillayleon.es | |
| Madrid | Hospital Ramón y Cajal | Email: joselopezsendon@hotmail.com Tel: +34 638 158 849 | |
| Valencia | Fundacion Hospital Universitario La Fe | Francisco Castera, Study Site Coordinator Email: franciscocasteraenroll@gmail.com Carmen PEIRO, Study Site Investigator Email: cpeirov@gmail.com Phone: +34 682893185 | |
| United Kingdom | Aberdeen (Scotland) | University of Aberdeen, Institute of Medical Sciences | Stella Sihlabela, Study Site Coordinator Tel: +44 1224 552120 Email: stella.sihlabela@nhs.scot Resifina Seyara, Study Site Coordinator Tel: +44 1224 552120 Email: resifina.seyara@nhs.scot |
| Birmingham (England) | Barberry National Centre for Mental Health | Contact info not provided | |
| Cardiff (Wales) | Cardiff University | Alison Johnson, Study Site Coordinator Email: Alison.Johnson@wales.nhs.uk | |
| Newcastle (England) | Newcastle upon Tyne Hospitals NHS Foundation |