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PRidopidine Outcome On Function in Huntington Disease (PROOF-HD)


The following list includes all PROOF-HD study locations that have been activated and are currently enrolling participants. This list will be updated as additional study locations are activated.

If you are interested in participating in PROOF-HD, please contact the HSG to be connected to a site nearest to you. Study center personnel will determine your eligibility to participate in the PROOF-HD study.

Contact North American Sites
Call Toll-Free (North America only): 800-487-7671
Email (North America only): info@hsglimited.org

Contact European Sites
Direct contact information (phone and/or email) for European sites will be provided in the table below for each site as they are activated.



ProvinceCityLocationContact Information
British ColumbiaVancouverUniversity of British Columbia
Nova ScotiaHalifaxHalifax Infirmary QEII Health Services Center Madie El-aghil, Study Site Coordinator
Phone: (902) 431-8783 Ext: 115
Email: madie.el-aghil@truenorthcr.com
QuebecMontrealCHUM Hospital of Notre DameVicky Thiffault, Study Site Coordinator
Phone: (514) 890-8000, ext 15921
Email: vicky.thiffault.chum@ssss.gouv.qc.ca

United States

StateCityLocationContact Information
CaliforniaSan DiegoUniversity of California, San Diego (UCSD)Email: jcoreybloom@ucsd.edu
Phone: (858) 249-0569
ColoradoEnglewoodRocky Mountain Movement Disorder CenterJessica Jaynes, Study Site Coordinator
Phone: (303) 357-5456
FloridaTampaUniversity of South FloridaKelly (Kolleen) Elliott, Study Site Coordinator
Email: kelliot@usf.edu  
IllinoisChicagoNorthwestern UniversityZsaZsa Brown, Study Site Coordinator
Phone: (312) 503-4121
Email: zsazsa.brown@northwestern.edu
KansasWichitaHereditary Neurological Disease CentreGregory Suter, Study Site Coordinator
Phone: (888) 232-4632
MarylandBaltimoreJohns Hopkins UniversityKia Ultz, Study Site Coordinator
Phone: (410) 955-1349
Email: kcarte23@jhmi.edu
MassachusettsBostonBeth Israel Deaconess Medical CenterSophie Antonioli, Study Site Coordinator
Phone: (617) 667-2355
Email: hdresearch@bidmc.harvard.edu
MissouriSt. LouisWashington University, St. LouisMatthew Lewis, Study Recruitment
Phone: (314) 747-5916
Email: lmatthew@wustl.edu
New YorkAlbanyAlbany Medical CollegeEmail: evanss@amc.edu
New York CityColumbia UniversityMiles DeGrazia, Study Site Coordinator
Email: MQD2103@cumc.columbia.edu
North CarolinaDurhamDuke UniversityMcKenzie Luxmore, Study Site Coordinator
Email: mckenzie.luxmore@duke.edu
Phone: (919) 684-0865
OhioCincinnatiUniversity of CincinnatiChristina Gruenwald, Study Site Coordinator
Phone: (513) 558-0112
Email: gruenwcm@ucmail.uc.edu
ColumbusOhio State UniversityCasey Mitchell, Study Site Coordinator
Email: casey.mitchell@osumc.edu
Phone:  (614) 685-9906

Katherine Ambrogi, Study Site Coordinator
Email: katherine.ambrogi@osumc.edu
Phone: (614) 688-6685
PennsylvaniaPhiladelphiaUniversity of PennsylvaniaJennifer Klapper, Study Site Coordinator
Phone: (215) 829-5176
TennesseeNashvilleVanderbilt University Medical CenterDr. Daniel Claassen, Study Site Investigator
Danielle Buchanan, Study Site Coordinator
Email: danielle.a.buchanan@vumc.org
Phone: (615) 875-3274
HoustonUniversity of Texas, Houston
VirginiaRichmondVirginia Commonwealth UniversityKelly Huckstep, Study Site Coordinator
Phone: (804) 965-4283
Email: kelly.huckstep@vcuhealth.org
Washington (state)SeattleUniversity of WashingtonDebra Del Castillo, Study Site Coordinator
Phone: (206) 543-3647
Email: debradel@uw.edu


AustriaInnsbruckMedizinische Universität InnsbruckDora Valent, Study Site Coordinator
Phone: 0512 504 83237
Email: dora.valent@tirol-kliniken.at
GermanyAachenEuregional Huntington Center Aachen (EHZA)Maha Sagar, Study Site Coordinator
Email: NeuroStudien@ukaachen.de
Tel: +49 241 80 80697
LübeckUniversity of LübeckSaruhi Surnaschjan, Study Site Coordinator 
Phone:+49 451 50043497
Email: saruhi.surnaschjan@neuro.uni-luebeck.de
MünsterGeorge Huntington InstitutTel: +49 251 7887880
Email: info@ghi-muenster.de
Taufkirchen (Vils)Kbo-Isar-Amper-Klinikum Taufkirchen (Vils)Michael Bachmaier, Study Site Coordinator
Email: Michael.Bachmaier@kbo.de
Tel: 08084-934-417
UlmUlm University
ItalyBolognaIRCCS Istituto delle Scienze Neurologiche di BolognaTel: +393387367104
Email: unitastudiclinici@ausl.bologna.it
MilanoFondazione IRCCS Istituto Neurologico Carlo BestaTel: +39 02 23942519
Email: centroHD@istituto-besta.it
RomaCSS-Mendel Institute at IRCCS Casa Sollievo della Sofferenza Research HospitalTel: +39 06 44700887
Email: info@lirh.it
PolandGdanskSzpital Specjalistyczny Swietego WojciechaAgnieszka Konkel, Study Site Coordinator
Tel: +48 609 952 555
Email: konkel1989@gmail.com
KrakowKrakowska Akademia NeurologiiEmail: centrum@neurologia.org.pl 
Tel: +48 12 426 92 80
SpainBarcelonaHospital de la Santa Creu i Sant PauDr. Jaime Kulisevsky
Email: JKulisevsky@santpau.cat
Tel: +34 649 14 23 60
BurgosBurgos Foundation for Health ResearchTel:  +34 947 28 18 00 ext 35380
Email: jessicajrp@hubu.es, mcubo@saludcastillayleon.es
MadridHospital Ramón y CajalEmail: joselopezsendon@hotmail.com
Tel: +34  638 158 849
United KingdomAberdeen (Scotland)University of Aberdeen, Institute of Medical SciencesStella Sihlabela, Study Site Coordinator
Tel: +44 1224 552120
Email: stella.sihlabela@nhs.scot

Resifina Seyara, Study Site Coordinator
Tel: +44 1224 552120
Email: resifina.seyara@nhs.scot