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PRidopidine Outcome On Function in Huntington Disease (PROOF-HD)

ACTIVE PROOF-HD STUDY LOCATIONS

The following list includes all PROOF-HD study locations that have been activated and are currently enrolling participants. This list will be updated as additional study locations are activated.

If you are interested in participating in PROOF-HD, please contact the HSG to be connected to a site nearest to you. Study center personnel will determine your eligibility to participate in the PROOF-HD study.

Contact North American Sites
Call Toll-Free (North America only): 800-487-7671
Email (North America only): info@hsglimited.org

Contact European Sites
Direct contact information (phone and/or email) for European sites will be provided in the table below for each site as they are activated.

NORTH AMERICA

Canada

ProvinceCityLocationContact Information
AlbertaCalgaryUniversity of CalgaryLorelei Tainsh, Study Site Coordinator
Phone: (403) 220-8413
Email: derwent@ucalgary.ca
British ColumbiaVancouverUniversity of British ColumbiaMike Adurogbangba, Study Site Coordinator
Email: madurogbangba@cmmt.ubc.ca
Phone: (604) 822-4872
Nova ScotiaHalifaxHalifax Infirmary QEII Health Services Center Madie El-aghil, Study Site Coordinator
Phone: (902) 431-8783 Ext: 115
Email: madie.el-aghil@truenorthcr.com
QuebecMontrealCHUM Hospital of Notre DameVicky Thiffault, Study Site Coordinator
Phone: (514) 890-8000, ext 15921
Email: vicky.thiffault.chum@ssss.gouv.qc.ca

United States

StateCityLocationContact Information
CaliforniaSacramentoUniversity of California, Davis (UC Davis) Medical CenterBecky Craig, Study Site Coordinator
Phone: (916) 734-3541
Email: rscraig@ucdavis.edu
San DiegoUniversity of California, San Diego (UCSD)Email: jcoreybloom@ucsd.edu
Phone: (858) 249-0569
ColoradoEnglewoodRocky Mountain Movement Disorder CenterJessica Jaynes, Study Site Coordinator
Phone: (303) 357-5456
District of Columbia (D.C.)WashingtonGeorgetown UniversityRobin Kuprewicz, Study Site Coordinator
Phone: (202) 893-1115
Email: rk1028@georgetown.edu
FloridaGainesvilleUniversity of FloridaKyle Rizer, Study Site Coordinator
Phone: (352) 733-2426
Email: kyle.rizer@neurology.ufl.edu
TampaUniversity of South FloridaKelly (Kolleen) Elliott, Study Site Coordinator
Email: kelliot@usf.edu  
GeorgiaAtlantaEmory UniversityElaine Sperin, Study Site Coordinator
Email: esperin@emory.edu
IllinoisChicagoNorthwestern UniversityZsaZsa Brown, Study Site Coordinator
Phone: (312) 503-4121
Email: zsazsa.brown@northwestern.edu
KansasKansas CityUniversity of Kansas Medical CenterCarolyn Gray, Study Site Coordinator
Phone: (913) 588-6983
Email: cgray1@kumc.edu
WichitaHereditary Neurological Disease CentreGregory Suter, Study Site Coordinator
Phone: (888) 232-4632
KentuckyLouisvilleUniversity of LouisvilleAnnette Robinson, Study Site Coordinator
Email: annette.robinson@louisville.edu
MarylandBaltimoreJohns Hopkins UniversityKia Ultz, Study Site Coordinator
Phone: (410) 955-1349
Email: kcarte23@jhmi.edu
MassachusettsBostonBeth Israel Deaconess Medical CenterSophie Antonioli, Study Site Coordinator
Phone: (617) 667-2355
Email: hdresearch@bidmc.harvard.edu
BostonMassachusetts General HospitalDr. Diana Rosas, Study Site Investigator
Phone: (617) 726-9045
MissouriSt. LouisWashington University, St. LouisMatthew Lewis, Study Recruitment
Phone: (314) 747-5916
Email: lmatthew@wustl.edu
New YorkAlbanyAlbany Medical CollegeEmail: evanss@amc.edu
New York CityColumbia UniversityMiles DeGrazia, Study Site Coordinator
Email: MQD2103@cumc.columbia.edu
North CarolinaDurhamDuke UniversityMcKenzie Luxmore, Study Site Coordinator
Email: mckenzie.luxmore@duke.edu
Phone: (919) 684-0865
OhioCincinnatiUniversity of CincinnatiChristina Gruenwald, Study Site Coordinator
Phone: (513) 558-0112
Email: gruenwcm@ucmail.uc.edu
ColumbusOhio State UniversityCasey Mitchell, Study Site Coordinator
Email: casey.mitchell@osumc.edu
Phone:  (614) 685-9906

Katherine Ambrogi, Study Site Coordinator
Email: katherine.ambrogi@osumc.edu
Phone: (614) 688-6685
OregonPortlandOregon Health & Sciences UniversityKeenan Ashby, Study Site Coordinator
Phone: (503) 494-7245
Email: ashbyk@ohsu.edu
PennsylvaniaPhiladelphiaUniversity of PennsylvaniaJennifer Klapper, Study Site Coordinator
Phone: (215) 829-5176
TennesseeNashvilleVanderbilt University Medical CenterDr. Daniel Claassen, Study Site Investigator
Danielle Buchanan, Study Site Coordinator
Email: danielle.a.buchanan@vumc.org
Phone: (615) 875-3274
TexasHoustonUniversity of Texas, HoustonJamie Sims, Study Site Coordinator
Phone: 713-500-7763
Email: Jamie.Sims@uth.tmc.edu
VirginiaRichmondVirginia Commonwealth UniversityKelly Huckstep, Study Site Coordinator
Phone: (804) 965-4283
Email: kelly.huckstep@vcuhealth.org
WashingtonSeattleUniversity of WashingtonDebra Del Castillo, Study Site Coordinator
Phone: (206) 543-3647
Email: debradel@uw.edu

EUROPE

CountryCityLocationContact
AustriaInnsbruckMedizinische Universität InnsbruckDora Valent, Study Site Coordinator
Phone: 0512 504 83237
Email: dora.valent@tirol-kliniken.at
Czech RepublicPragueCentrum extrapyramidových onemocněníJiri Klempir, MD, Study Site Investigator
Tel:   +420  732 273 271
Email:  Jiri.Klempir@seznam.cz
FranceBordeauxCentre Hospitalier Universitaire (CHU) de BordeauxMarie-Pierre Baudier, Study Site Coordinator
Phone: +33 5 56 79 59 52
Email: marie-pierre.baudier@chu-bordeaux.fr
LilleCentre Hospitalier Universitaire (CHU) of Lille – Hôpital Roger SalengroEric Decorte, Study Site Coordinator
Email: eric.decorte@chru-lille.fr
MarseilleHôpitaux Universitaires de Marseille Timone
ParisCentre Hospitalier Universitaire (CHU) Henri MondorTiffany Monnier, Study Site Coordinator
Tel. 01.49.81.37.93
GermanyAachenEuregional Huntington Center Aachen (EHZA)Maha Sagar, Study Site Coordinator
Email: NeuroStudien@ukaachen.de
Tel: +49 241 80 80697
BochumHuntington Center North Rhine-Westphalia,
Department of Neurology,
Ruhr-University Bochum,
St. Josef-Hospital Bochum
Email: d.kaminski@klinikum-bochum.de
Tel.: +49-234-509-2703
LübeckUniversity of LübeckSaruhi Surnaschjan, Study Site Coordinator 
Phone:+49 451 50043497
Email: saruhi.surnaschjan@neuro.uni-luebeck.de
MünsterGeorge Huntington InstitutTel: +49 251 7887880
Email: info@ghi-muenster.de
Taufkirchen (Vils)Kbo-Isar-Amper-Klinikum Taufkirchen (Vils)Michael Bachmaier, Study Site Coordinator
Email: Michael.Bachmaier@kbo.de
Tel: 08084-934-417
UlmUlm University
ItalyBariUniversita’ di Bari
BolognaIRCCS Istituto delle Scienze Neurologiche di BolognaTel: +393387367104
Email: unitastudiclinici@ausl.bologna.it
MilanoFondazione IRCCS Istituto Neurologico Carlo BestaTel: +39 02 23942519
Email: centroHD@istituto-besta.it
RomaCSS-Mendel Institute at IRCCS Casa Sollievo della Sofferenza Research HospitalTel: +39 06 44700887
Email: info@lirh.it
NetherlandsLeidenLeiden University Medical CenterTel: 0031715265442 
Email: huntington@lumc.nl
MaastrichtMaastricht UniversityDr. Mayke Oosterloo, Study Site Investigator
Phone: 0031-(0)43-387 76 76, Email: expertisecentrumhuntington@mumc.nl
PolandGdanskSzpital Specjalistyczny Swietego WojciechaAgnieszka Konkel, Study Site Coordinator
Tel: +48 609 952 555
Email: konkel1989@gmail.com
KrakowKrakowska Akademia NeurologiiEmail: centrum@neurologia.org.pl 
Tel: +48 12 426 92 80
WarsawInstytut Psychiatrii i NeurologiiGrzegorz Witkowski, Study Site Investigator
Email: gwitkowski@ipin.edu.pl
Phone: +48694904208
SpainBarcelonaHospital de la Santa Creu i Sant PauDr. Jaime Kulisevsky
Email: JKulisevsky@santpau.cat
Tel: +34 649 14 23 60
BurgosBurgos Foundation for Health ResearchTel:  +34 947 28 18 00 ext 35380
Email: jessicajrp@hubu.es, mcubo@saludcastillayleon.es
MadridHospital Ramón y CajalEmail: joselopezsendon@hotmail.com
Tel: +34  638 158 849
ValenciaFundacion Hospital Universitario La FeFrancisco Castera, Study Site Coordinator
Email: franciscocasteraenroll@gmail.com

Carmen PEIRO, Study Site Investigator
Email: cpeirov@gmail.com

Phone: +34 682893185
United KingdomAberdeen (Scotland)University of Aberdeen, Institute of Medical SciencesStella Sihlabela, Study Site Coordinator
Tel: +44 1224 552120
Email: stella.sihlabela@nhs.scot

Resifina Seyara, Study Site Coordinator
Tel: +44 1224 552120
Email: resifina.seyara@nhs.scot
Birmingham (England)Barberry National Centre for Mental HealthContact info not provided
Cardiff (Wales)Cardiff UniversityAlison Johnson, Study Site Coordinator
Phone 1: +44 (0) 7970 348782
Phone 2: +44 (0) 2920746394
Email: Alison.Johnson@wales.nhs.uk