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Site Survey: Patients Supported by HD Centers (2019)

During March 2019, the HSG surveyed their 86 United States based sites (HD Centers), with 63 responding to reveal an average of 135 HD patients per center. Thus:

  • A total of 11,633 HD patients are estimated to be served by the HSG’s 86 US locations.
  • If the numerator is the number of patients seeking care (11,633 in the United States) and the denominator is the approximately 30,000 patients in the US with symptomatic HD (based on the literature), then it appears that there are 70% of people with HD who evade care.