What HSG Means to Martha

What does HSG mean to you?


The HSG, simply stated, represents the best hope for better treatments, hopefully disease-modifying treatments, for HD. The changes taking place within the HSG, broadening its membership base, will push this effort faster, by bringing in more people-power! I am hoping for more ideas, more connections, more rapid communication, novel approaches, and a more rapid pace of discovery!

What’s the most meaningful aspect of working with HD patients?

If you connect properly with a patient and family, if you give them a solid piece of ground to stand on–they know what HD is and does and what to expect, and you manage their symptoms as well as you can, and if they know that you will be there for them throughout the course of their disease–if you do those things, then the patients and their families will use their own energy and skills and creativity to live their lives to the fullest, and maybe even to pull other less fortunate patients along with them. I have been privileged to know some remarkable people over my years working in HD.

Martha Nance, MD

Director, Huntington Disease Clinic
Hennepin County Medical Center
Minneapolis, MN

What HSG Means to Julie

What does HSG mean to you?

stout​HSG means we can amplify our individual efforts by working together to be I strategic, to progress HD clinical research as rapidly as possible, and to save time and money by sharing our expertise and ​insights about how to constantly improve practices that will help us find treatments for HD.

What’s the most meaningful aspect of working with HD patients?   

​For me the draw of HD is the family. I am endlessly compelled by the generosity with which families care for those family members who have HD, and the resilience many families show under such challenging circumstances.​

I am also encouraged by the positive attitude and grace that many people with HD show​ in the face of such significant personal health challenges.

Julie C. Stout, PhD

Professor, School of Psychological Sciences
Faculty of Medicine, Nursing and Health Sciences
Monash University, Clayton Campus

What HSG Means to Claudia

What does HSG mean to you?

testaWorking with top researchers on a common goal is exciting and rewarding. HSG means bringing accomplished research teams together into a smart, welcoming community – it’s motivating to be a part of that.

What’s the most meaningful aspect of working with HD patients?

The impact of HD on patients and families is clearly motivating to all who work in the field. I decided to take that question in a different direction. This is on our movement disorders center website: It didn’t take me long as a physician-scientist to realize that patients are my best teachers. I owe my entire approach to clinical care and clinical research to HD patients. From exploding my expectations on how people react to genetic information, to viewing clinical trials as collaborations between many stakeholders including patients, the things I’ve been privileged to learn from HD patients influence every day.

Claudia M Testa, MD, PhD

Associate Professor, VCU Department of Neurology
Huntington Disease Program Director, VCU Parkinson’s & Movement Disorders Center
Joan Massey Chair in Clinical Parkinson’s Disease

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